Topic: Hi-De-Hi Campers !
My names Mark I'm 41 and live in Greenwich, London UK. I was diagnosed with CC in October 2006 but was ill from around Christmas 2005 as my GP didnt have a clue what to do with me except send me for endless blood tests due to my jaundice and weight loss. Anyway eventually I had an ultrasound then MRI then finally an ERCP which was unsuccessful and gave me an infection leading to my admission to Kings College hospital in London in August 2006.
Eventually after every form of scan & biopsy known to man they gave the the good news in October, CC inoperable ! .... Gulp I was 39 at the time and my daughter was 3 so it was a bit of a blow as you can imagine. They inserted a Titanium stent and sent me home where I became quite unwell due to the stent getting infected and had to be readmitted and have 4 units of blood ! My partner tells me I was about 30 minutes from kicking the proverbial at one point which is pretty sobering.
So here I am in 2008 still fighting the good fight ! I've had 2 types of chemo, Gemcitabine and Capecitabine plus a nerve block and most recently Photodynamic Therapy. I have been pretty lucky in that I've been pain free most of the time and have been able to lead a fairly normal life, I'm even still playing the drums in my band !
I think this illness has been harder on my family and loved ones as they've had to cope with worry and stress.
My partner Lorna is already registered on here, shes my rock and without her I would most certainly not be here typing this !
So I thought I'd pop along and say hello all
Long life, love and happiness to all