Topic: Newly diagnosed today in Jenkintown, PA
Hello, my name is Jen Burke, and I am in charge of handling things for my family. Today my dad was diagnosed with CC as of 4 hours ago.
He spent a full week in the hospital last week as the doctors tried to figure out why his liver stopped working. He had a stent installed in the duct, which stopped his jaundice and some other ugly symptoms. He feels a bit better, but the fatigue and weakness are overwhelming.
He is 82. I want him to have the best life possible and the best care. I want to give him great quality of life for as long as possible.
We live in Jenkintown. I have lupus and use rheumatology/oncology doctors at University of Penn Medical Center, Jefferson University Hospital, Hahnemann/Drexel and Abington Memorial Hospital for all my care needs. Although I know the medical system in the Philadelphia area well, CC is totally new to me, and I am trying to get my bearings.
I have heard great things about Fox Chase Cancer Center. I thought I would start off there to get an initial consultation for my dad to get the treatment rolling.
Does anyone have any suggestions for care in Philadelphia, an oncologist who has CC as a specialty? I am also willing to make arrangements to bring him to Johns Hopkins if needed, but would prefer to do as much locally as possible because of his and my own physical limits.
I am so happy to have found this forum.
I feel a little panicky.
I'm about to start searching this site, but if you have personal experience with a doctor, I'd love to hear it.