Re: My Brother
Dear Geoff, Peter, Rick & Stacie-
Geoff, I haven't heard of anyone for whom Sorafenib has worked. You might want to read the Martin family blog - she did it for a brief time. It does work really well on renal (kidney) cancer. I really wanted to stick with it despite the nasty side effects, and I don't think they really gave it a chance to work on me. The trials have very set rules, so I got booted off when my tumors had grown beyond the limits set by the trial. Another person with CC died earlier this year who was on Sorafenib. And another young man from the west coast - can't remember his name - also had to go off it as well - it didn't seem to be working for him. I have a picture of me with the rash it caused, and if I can find a way to post it on my blog, I will. As for Co-Q-10, it is a coenzyme and I think it is an anti-oxidant, but I'm not sure. Can anyone out there answer this?
Peter & Rick - Rick, I e-mailed you about copying my very long post to a new topic under the treatment forum called "Treatment Summaries". I thought this might be a good place where patients could post a summary of their experiences, so we could see what different people have tried and what has worked.
Stacie - thank you for the info!