Topic: Trying to help aunt Who is 900 miles away
I've been reading the posts here and I finally have some hope for my 78 year old aunt who has cholangiocarcinoma. She lives in Florida, 900 miles away from me, and was diagnosed in January of 2008. In addition to the cancer, she fell and broke her hip at the end of July. She has mets to the left hip, but she broke her right hip. She had to be moved from her home to a rehabilitation center. She was receiving chemotherapy until she broke her hip.
It's been so frustrating trying to find out what her prognosis is. I made a trip to Florida and met with her oncologist, but was unable to get much information from him, although my Aunt signed a release of information form. All I have is her original diagnosis and her bone scan report. According to what I have read on the internet, her changes are slim; however, since reading the wonderful posts here I realize that this cancer can be controlled through various therapies.
Right now we are trying to decide whether to leave her in Florida, or try to move her closer to me in Illinois. I think I would have a better opportunity to get more information from a doctor if she was closer. Oh, I forgot to mention, she also has moderate dementia so she becomes agitated easily. I don't want to do anything to upset her.
Thank you for providing much needed information about this disease.