Topic: Dad now under hospice care- a chronology of what we experience
I thought I would write what we experience now after treatment has stopped and Dad starts on home hospice care. I know for me I've searched this site for things to expect as the disease progresses. My hope is that this will provide at least our experience to someone else going through the final stages.
Dad went on hopice care Thursday 9/25. Hospice nurse, chaplain and social works have all been by. Our first impression of hospice is that they bombard you with all kinds of medications intended to control pain without first learning about the patient and his conditions. After lots of talking, they finally got it. Dad is not in a lot of pain and we do not want to put him in a "comatose" state by giving him pain medications. He has terrible reactions with opiates so anything with opiates is out of the question.
Dad symptoms are; severe weakness, severe fatigue, blood sugar (he's diabetic) dropped down to a dangerous 50 this morning. Back up to 109 now. We've increased his dose of anti-depressant and giving him ativan as needed for anxiety. He just wants to be left alone. He gets really agitated and annoyed when you ask him questions regarding how he's feeling.
His cancer has mets to lungs, small brain lesion and all over liver. His urine is now the color of "orange" gatorade and his stool is now a light grey in color. He has 3 stents so we wonder if they've stopped working. He color is a little jaundice. Today he has not gotten out of bed except once to have a BM. He has eaten a breakfast burrito and small hamburger.
After going to the bathroom he came out and fell back onto the bed and is laying sideways across the bed. He's too weak to lay properly on the bed. He is currently using oxygen to help with his shortness of breath.
I'll keep posting as things progress. I hope this helps someone out there wanting to know what could be expected. (Although I know everyone is different).
Thoughts and prayers to all patients, caregivers and their families