So sorry to hear about your brother but you will be a godsend in how you will be able to help.
My mom has cc and I suggested that she and my Dad see their attorney. They drew up a durable power of attorney, a medical power of attorney and their (can't think of the name of it but it spells out end of life options such as feeding tubes ect....) My parents gave me power of attorney and when I go to get copies of medical records, scans or whatever I just show the copy of the document. These days most CT, MRI's and other reports are all digital so I just get the CD of them. The first copies are free. Our oncologist usually hands me a copy of the current blood work before we go to the chemotherapy room. Mostly it's just thinking to ask and having the documentation that says you are the patient representative.
This type of behind the scenes work will keep your brother from having to deal with lots of redundant paperwork.
Hospitals have to work under HIPPA guidelines so they have to be careful in who they give results to. They usually aren't being hard to get along with it's just government regulations that they have to follow.
Remember you are his advocate. Don't be afraid to speak up, ask questions and keep asking until the answer is in a form you can understand. Every business has it's own language and it's no different in the Medical field. Unfortunately you'll have to learn a language you didn't want to! My parents are of the generation that believes if a doctor wants you to know something, they will tell you. I've had to reeducate Mom and Dad to the reality that they are paying for a service and they should demand the best.
You and your family are in my thoughts and prayers. Your brother is unlucky in that he has cholangio but wealthy in the love of such a brother as you.
Let us know if we can help........
My Mom lost her one year battle with CC on April 3, 2009.
"A prognosis is simply an audit of how truly precious each day is. Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.