Topic: A new chick to the site

Hi everyone! As some cancers get lots of attention (no offense to those who 'rock' the pink ribbons), I've been a bit irritated that there is so much we don't know about this cancer and so little awareness. It's especially hard because it's a 'hidden' cancer, one that people don't readily recognize....

With that said, I'm angry (going through so many emotions) and I've been looking for some sort of site, organization, ANYTHING regarding this cancer -this site is great!

Sorry for a little bit of ranting, My mom's cancer resurfaced and the prognosis is a year or less. We're experiencing many emotions right now and I'm hoping I can support her in whatever way I can (which is why I'm joining the site -- there's a lot of good advice here).

I wish the very best for everyone here smile

Re: A new chick to the site

As I always say, welcome to the best  little club in the world that no one wishes they had to join. What you are going through mentally is perfectly normal! Can you tell us a little more about your mom? Please feel free to rant all you want, this is the best place.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: A new chick to the site

She's 60 years old, was first diagnosed last year and had surgery, chemo, and radiation. It's come back and has spread into her liver, and we are waiting for further tests to determine where else it has mets....which may tell us whether or not treatment options are available. She has a few hernias also which she says are causing her a lot of pain (the mesh that was put in failed and docs are not focusing on that right now). I think my mom already has it set in her head that she's going to die (she has expressed that she may not want treatment no matter what). She especially hates living with the daily medications and the constant weakness; she doesn't like talking about it much right now to anyone - we're still in shock... I'm trying to be optimistic for the both of us, but she is quite angry and pessimistic. I certainly don't understand everything she's going through and am concerned for her emotional well-being and I want her to live pain-free.

As you can see, my thoughts are all over the place....she and I both are, well, lost....

Re: A new chick to the site

Hi anonymiss,
Welcome  - and sorry you had to come here. I just had to jump in and tell you that my mother was similar to yours - didn't have much hope, was pessimistic and depressed. Still, I would get very annoyed when people would point out all those cheerful cancer sufferers and keep talking about having a positive attitude, because not everyone can be like that and I don't blame them at all - didn't blame my mother for not being chipper! It's hard to imagine what someone is going through when they get a dire diagnosis like this -- it's pretty normal to be depressed, I'd think! Everyone deals with this differently and that's their right.

Also, my mother was a very logical realist, so she wasn't kidding herself. That's not to say that YOUR mother has no options, and I hope they find some way to kill your mother's cancer for good - but she has every reason to feel angry and discouraged right now. I looked into antidepressants and anti-anxiety meds for my mom, and they helped somewhat, though a little late in the game.  Your main objective is to support your mom's wishes and foster a life that's free of pain, both mental and physical, so maybe some antidepressants would help. If she's averse to all the medications, look into some of the natural remedies (listed on this site under Alternative Treatments, I think) - though I don't know if there's any natural mood enhancers out there! Really, though, antidepressants, anti-anxiety and pain relievers are the most important tools to fight against the hopelessness, in my opinion.

I know this must be so tough on you -- I tried to be the optimistic cheerleader for my mom, too, but she was too angry sometimes to appreciate it. I coped then and now by trying to put myself in her shoes, and those are shoes that no one should have to wear. I feel now that she really needed someone to talk to her forthrightly, someone to listen to her fears, and since I was her daughter, she didn't feel like she could burden me with that - even though we were best friends. She had a hospice counselor talk to her at one point and it really lifted her spirits - so that's another avenue you may try. They will send out clergy or social workers, even for the caregivers (and God knows the caregivers need some support, too!) Is there a clergyperson or a nonprofit psychology clinic that would have someone she could talk to?

Sorry I have the tendency to go on and on--- I really feel for you and your situation - you have a lot of responsibility on your shoulders and if your mother decides not to continue with any treatment, you'll inevitably feel guilty, like you should have forced it. So I just want to say that you can't force anyone to be any different and you should never blame yourself. You are doing a wonderful job and you are an amazing daughter, so don't lose sight of that! Your mother loves you unconditionally, no matter how remote she may seem right now, and she appreciates all you're doing.

I wish all the greatest outcomes for you and your mother - please keep us posted!
Joyce M

Re: A new chick to the site

Hi,

I too am glad you found your way here. I agree with everything that Lainy & Joyce have already said. I also understand your feelings about how much attention all those other cancers get & that there is so little awareness of this silent, violent & aggressive cancer, as I feel the same.  I guess that is why we are here. Hopefully all of us here can make a difference. Come here as often as you feel the need to. Everyone here understands & are here to help support you & your family.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: A new chick to the site

Dear Anonymiss,  You took the words right out of my mouth.  If I hear Breast Cancer awareness month one more time.....so glad it's almost November.  Of course with all due respect to breast cancer patients. 

I am too frustrated with the lack of awareness, research and treatment for CC.  If I heard it once I heard it a dozen times, how rare this cancer is....is that suppose to make me feel better. 

There must be someway to get this out there.  I think sometimes I am just going to head to Washington DC and raise hell.

If i could only get a chance to ask questions to the presidential candidates I would ask them whether they plan on increasing funds for cancer research.   That's a question they probably haven't had to answer, I wonder why. 

If as caregivers we weren't so busy trying to save our love ones......we would have time to advocate for our loves ones.

LuLu

I miss you more and more everyday. 
RFL 6/28/58-12/27/08