Topic: Misdiagnosis but went through gemzar/oxiloplatin
I was diagnosed as having HCC (hepatocellular carcinoma) in 12/2007. Was put on Nexavar but that caused problems with not being aware of how to use a fork and knife, unable to dress myself, these episodes would last about 24-36 hours then all would be normal. After several of these "episodes" I was taken off that drug. Found another doctor/hospital (don't know if I should mention the center I went to).
Received same diagnosis and was put on Gemzar/Oxiloplatin every two weeks. The "episodes" still occurred about every three weeks. In May of 2008 after a 3-day comatose state the doctor decided to remove me from chemotherapy. My life expectancy was about to July/August.
In late July a dooctor called and asked if I'd be interested in a "clinical trial" of a new drug. I was only too happy to do so. I went to the clinic, filled out yards of paperwork, CAT, MRI, EKG, EEG, blood work and then a needle biopsy. Two days later the doctor called, the lab could not find evidence of HCC! To be sure my tissue samples and blood were sent to the Mayo Clinic for further testing. 6 days later, Mayo Clinic called and verified the finding of the clinic. I did not have HCC and never did! I have beginning cirohsis. What a bitter-sweet bit of news!
My question to ANYONE is what will the exposure to the chemo therapy do to me down the road? Will the attempted cure be my demise? Someone talk to me and give me your opinion on this issue......Please!