Topic: It's been 26 months- now what?
It has been 26 months since my husband's last treatment. He had brachytherapy in Nov'06.Today he went for his 3 month checkup and bloodwork and even though everything remains the same as far as a lack of visible tumor the Docs seem to think he should have surgery in order to secure a real "cure". They are completely convinced his klatskin tumor will recur and are convinced that it most likely will not metastacize because it hasn't yet after all this time.They think that removing all of the scarred bile duct and surrounding liver will give him the best chance of a "long" life ecspecially since he has no mets after over 2 1/2 years from diagnosis.We understand what they are saying and the truth is Tom can't continue to have stent changes every two months without some serious complications eventually. At least after the surgery he won't have to deal with stents.Our problem is that he is doing so well right now and feeling so good, do we really want to take the chance of major problems after surgery? Even though everyone here has been told that the only cure is surgery, that's what all the Docs say, after 2 1/2 years on this website I haven't really seen where surgery has been all that successful either. It seems like a majority of people have had surgery only to have tumors recur within months or even weeks sometimes.My husband has truly been one of the biggest miracles of all because they actually tell him he is in remission and he never was resected. I sometimes wonder if the surgery causes cells to wander and speeds up recurrence? The Docs say no but then they said he would be dead by now so I guess no one really knows for sure. Anyway I think we are going to play wait and see and not do anything until next fall unless there are real signs that the tumor is returning. He will undergo an ERCP under anesthesia on the 26th and they will take more photos and possibly a tissue biopsy. That should show for sure exactly what we are dealing with. What a wild ride this cancer is. You never can think you are truly cured because it never seems to want to give up it's hold on you. Because of the grim statistics the Docs never want to be too positive either because they know the odds.I'm extremely grateful for Tom's success so far- we have been unbelievably blessed. There are so many others that have lost their fight in the 2 1/2 years I have been on this site that reality really hits home when I go through the family blog list. I started on here when almost all of them were alive and read all of their struggles. It is truly heartbreaking and scary. My prayers are with all of my old friends that are still fighting on and all of our new ones just starting their battle.Lets all pray for a cure!! Mary