1 (edited by rortmanns Tue, 17 Feb 2009 17:42:30)

Topic: How does this horrible disease progress?

Hi everyone,

Fiona was diagnosed with CC in August 08, she didn

Re: How does this horrible disease progress?

Ralf,

This monster of a disease seems to affect people differently. 

I know you will have many more responses to your questions, but for now try entering your query in the SEARCH FORUM at the top of the page. 

This will bring up pertinent posts on the subject.

My heart goes out to you and I'm glad you've found our site.  There is much, much love and help available here.

Hugs to you and Fiona,

Pam

My Mom lost her one year battle with CC on April 3, 2009.

"A prognosis is simply an audit of how truly precious each day is.  Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.

Re: How does this horrible disease progress?

Ralf,

Welcome. I am also glad that you have found this site, but sorry that you have the need to be here.  As Pam has said, this disease is so unpredictable. What works for one does not work for another. There are so many questions & not many answers.  The only thing we know for sure about this disease is that we don't really know anything for sure.

As Pam suggested, search the site as there is a lot of knowledge here. I also am sure you will be hearing from others that can give you some help and answers to your questions.

My thoughts & prayers are with you & Fiona. I will be hoping for the best for you on your journey with this horrible relentless disease.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: How does this horrible disease progress?

Ralf - I ditto what Darla and Pam said.  My Daddy was diagnosed in 8/07 and passed away 1/14/09.  I found this site in September 07 and there is a wealth of information here.  I just clicked on everything, read and researched.  This horrible cancer is not predictable at all, however, you have found a wonderful place to come for comfort and friendship!

Good luck - and I send warm wishes to you and Fiona.

Smiles through tears,
Patsy

Re: How does this horrible disease progress?

Dear Ralf,
I echo what everyone else has said and I urge you to look up "end of life" or something similar in the search function, as there are so many different stories and variations.

I feel your pain and helplessness, and I empathize, since I was in the same boat with my mother and I needed desperately to know how to prepare. Of course, even with all the best knowledge, we're never fully prepared. But I cope by trying to understand and prepare, and I guess you're that way, too. You can look up my old posts (search under jmoneypenny) to see what I've posted about my mother's last days. She, too, had bad ascites and weakness, and it happened relatively fast. I'm not saying this will happen to Fiona, just want you to be aware of worst-case scenarios.

My heart breaks for you and Fiona. Wishing for the best,

Joyce M.

Re: How does this horrible disease progress?

Ralf-

I am so very sorry to hear of Fiona's current situation.  It's not good news, the ascities.  I am surrounding you both with positive energy now as I type this.

To answer your question honestly, and I think you need an honest answer, ascities is intracellular fluid that in almost cases with cancer builds up repeatedly, despite efforts to remove it via ports and drains.  It becomes a terrible way to live and, at least for my Mother (who was 61), was quickly too much for her system to handle. 

It may have been the series of events in her life previous to that occurring, but her energy waned quickly.  She was strong, knocked down, and gone before my mind could cope with the thought of loosing her.  I am so sorry not to offer you hopeful news, but you must prepare, and by your mere question, intuitively, you know this. 

I hated to even consider the word hospice, but they helped support my Mom and our family through this difficult time.  The people we encountered offered suggestions at every turn and they were able to give is reality checks as we needed them.  Make her comfortable in any way you can. 

(((Hugs))) to you both.  You are right... this disease is horrible.  Be brave and find support for yourself and Fiona quickly.  -ljg