Topic: Back from the oncologist

I met for the first time with my oncologist. There has been a HUGE problem because I really didnt like this oncologist and told everyone who would listen that I would NOT, NEVER see this doctor again. But there were problems transferring my case, disinterested doctors, you name it so under the advice of my surgeon, I swallowed my pride and met with this oncologist again (with my husband and psychologist in tow)

No more surgery for me. The tumor needs to shrink some. The doctor is worried that more surgery now will divert my body into healing from the surgery and away from fighting my tumor. She said that sometimes surgery can cause rapid tumor growth.

I am to start Xeloda and Oxyplatin (sp) on Wednesday. I will take Xeloda 2 times a day for 2 weeks with a week off and the Oxyplatin will be given intraveniously once every 3 weeks. I will also be given antibodies every other week. The type of antibody I will be given will be determined by which subset type of cc I have. The oncologist is very interested in me getting surgery, but wants to shrink the tumor first. Nothing has been ruled out. We discussed cyberknife, PDT, RFA and other treatments and they are all on the table...IF the tumor shrinks enough.

Because the tumor cannot be seen with CT or MRI, I will have a PET scan soon and another in 2 months to check progress. I will have a portacath (sp) also put in sometime soon. My liver function was not bad, but it could be better and I was told to get off the vitamins and suppliments for the time being so my liver would have less to process.

The funny thing was that I got a "goody" bag branded with Xeloda and filled with foot and hand creams. It was like my little gift for joining the chemo club.

I dont know if I have shared this yet, but in Swedish, chemo is called "cell poison". Doesnt that just sound like fun?

I am feeling great and am completely recovered from my stomach surgery. I havent felt so good in 6 months. I wish Peter was still here because I am about to dye my hair red again and I am sure he would tease me ruthlessly and make me laugh. Off to be a red bombshell and take on Sweden and my tumor. I am woman, hear me ROAR!

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Back from the oncologist

You go, girl!

You're going to be on the same regimen that I'm on.  I have had very few side effects, so I hope that you will be lucky in that respect, too.

"Cell poison".  Wow.

Re: Back from the oncologist

Kris,

It is wonderful news to hear how good you are feeling. I do admire your attitude, especially with what you have all been through.

I have always suspected that in some cases it appears that surgery promotes rapid tumor growth. I have never heard of a doctor who would admit this tho'.

Keep us updated as to how you are doing. I think you will look great as a red head. I think we all wish Peter were still here, but I am sure he will be teasing you from heaven. smile

You go girl!

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Back from the oncologist

Red heads are unstoppable! I know, my best friend is a red head and was born on Valentine's day, to boot. If you are not the cat's meow I don't know what!
You sound great and we are so glad you are feeling so good. Watch out world, here she comes!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Back from the oncologist

Kris,

You are such an inspiration.  I KNOW that this isn't easy for you, but you are so upbeat and postive.  That makes such a difference in your recovery.  I am proud of you.

Mom is on the exact same "cell poison" that you will start.  Although she takes 3 xeloda 2 times a day for a total of 3000 mg a day.  Xeloda sould also have a nurse call you every once in a while to check on you.

Good luck to you!!  Big hugs!
Amy

Re: Back from the oncologist

So good to hear from you, Kris, I admire your spirit and your guts. I am thinking of you--Go girl go!Belle

Re: Back from the oncologist

Kris,
  This treatment plan sounds very well thought out. I agree that surgery sometimes makes tumors take off - it certainly did in Butch's case, and it is so important that you remain strong to be able to fight this beast. I am so glad that you are feeling well - they are right - you go, girl!

Joyce C.

Re: Back from the oncologist

Hi Kris:

I am a redhead too -- and if anybody can even tame this beast a little bit, it's us! Seriously, though - all my thoughts are with you. The idea of the chemo goody bag is so strange it makes me laugh -- I think it struck you that way, too.

Take good care,
Irene

Re: Back from the oncologist

Dear Kris,
Good luck with the cell poison! A fellow redhead (strawberry-blonde, whatever you want to call it) is rooting for you!
-Joyce M

Re: Back from the oncologist

Hi Kris

Glad to hear you are getting such good care.  Reading between the lines, are you now a bit more comfortable with your oncologist?  I wish you all the best with your chemo; hope that it works in shrinking the tumour; and doesn't take too much out of you.

The portacath looks very interesting.  I have a Hickman line that serves a similar purpose but the tube hangs outside my body.  The portacath is kept under the skin so you will be able to keep up your sun bathing and swimming.

I didn't know that the red came out of a bottle!  So have you adopted the characteristics of a true redhead or are you really a split personality?  Don't fret about lack of comment about your colouring.  I'm sure I'll think of something to rile you a bit!  You never know, it might turn out ginger.

All the best

Ron

Re: Back from the oncologist

Kris,

Wait til you get the oxyliplatin goody bag.   It came with a large pair of winter type gloves so you can be protected against the cold neuropathy...

lol.....

Pam

My Mom lost her one year battle with CC on April 3, 2009.

"A prognosis is simply an audit of how truly precious each day is.  Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.

Re: Back from the oncologist

I have to commend all of you.  You all have such a great attitude and have kept your sense of humor regardless of what you have been through or what you may be facing in the future. I am so proud of all of you. Keep it up. Stay strong & keep on fighting.  I'm always hoping for the best out come for every situation. My thoughts & prayers are with all of you.

Lots of love & cyber hugs coming your way,

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Back from the oncologist

Kris -  a big round of applause for you, from a couple of SC girls, by way of Atlanta!  You can never know how your story has been such an inspiration for Suzanne and me - your attitude and approach to this nasty thing has helped us along on our journey, and will continue to be a source of strength for us. 

Terri

Re: Back from the oncologist

Hey Kris, I'm so glad you're feeling good.  I've been worrying about you.  I know you miss Peter as we all do.  All good thoughts and prayers to shrink the tumor!!

Love, Carol

Re: Back from the oncologist

Kris...I pray that along with you feeling great, you will continue that spunky, sassy way of looking cancer right in the face, and not taking no for an answer.  I admire your courage and strength...you remind me of the fight Lee fought...thank you for reminding me of the incredible determination and super human strength Lee had...and that you  now posess...God bless you Kris....

Love,
Heather

Re: Back from the oncologist

Thanks everyone. I am blushing from all your kind words. I do feel very strong at the moment. I have a meeting on Monday with my psychologist. Hans and I usually meet seperately, but this time I want us to meet together so I can get more emotional strength from him before poison day on Wednesday.

I googled the antibodies they are deciding between (Erbitux, Avastin, Vectibix) and they all seem ok. I was astounded by the cost around $45,000 or more a treatment cycle.  How much do I love socialised medicine?

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

17 (edited by Darla Mon, 02 Mar 2009 06:43:03)

Re: Back from the oncologist

Hi Kris,

No need to blush, you deserve every word. I am hoping you will get all the support that you & Hans need to get you through this. I will be thinking of you & wishing you the best on "poison day". 

Here in the US, as you already know, most people are against socialized medicine. With the cost of health care and insurance so out of control, I for one think it is need and am all for it. I think there are a lot more positives than negatives to national health care. Not sure if it will every happen here. Too much money & politics involved I guess. Being sick in the US is almost "cost prohibitive" with or without insurance.

You are fortunate to be in a country that is handling health care in that way.
Again, I wish you the best & will keep you in my thoughts & prayers as your journey continues. Please keep us posted as to how you are doing.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Back from the oncologist

Huh? Most people are against socialized medicine? A lot of surveys show just the opposite-- that most people in the United States WANT universal health care. (One lucky category of people here already has it-- it's called Medicare!!)

Kristin

Peace, hope, and healing to all!

Re: Back from the oncologist

Kristin,
    I have a lot of online arguments with people that are against "socialized" medicine. The truth is we already have a great percentage of our population on gov't based insurance programs- medicare, medicaid, schip , tricare and the VA. Then we have a bunch with no insurance and the rest on private. The gov't based are the best as far as I'm concerned. I have family members that have been in all of the above and they've all received excellent care. It's the private insurance we're always fighting with and people here are fighting with. It would just be nice to know you could get sick and not have to worry about losing everything you've worked your whole life for. I have insurance but it's $5000 deductible so I ignore a lot of things and hope they go away. Heres to Medicare for All!!!

Re: Back from the oncologist

Mary,

I too talk to a lot of people who do not want it. They feel the care would not be as good or as efficent. I feel as you do that the care is just as good for those who are getting government based care. The cost of insurance is so high as are the deductibles. Not to mention that so many legitimate claims are denied, even by the so called "good insurances". It is an on going fight to get them to pay for a lot of treatments as many on this board well know.  I too ignore a lot of the little things. Unfortunately, I have a few years to go yet before I would qualify for medicare. smile

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Back from the oncologist

Good luck with the chemo-my sister started today for a different cancer.To me the American health system sounds too complicated and with too many players.Ours in Australia is more of a blend of the 2 types of system
                        Janet