Topic: Back from the oncologist
I met for the first time with my oncologist. There has been a HUGE problem because I really didnt like this oncologist and told everyone who would listen that I would NOT, NEVER see this doctor again. But there were problems transferring my case, disinterested doctors, you name it so under the advice of my surgeon, I swallowed my pride and met with this oncologist again (with my husband and psychologist in tow)
No more surgery for me. The tumor needs to shrink some. The doctor is worried that more surgery now will divert my body into healing from the surgery and away from fighting my tumor. She said that sometimes surgery can cause rapid tumor growth.
I am to start Xeloda and Oxyplatin (sp) on Wednesday. I will take Xeloda 2 times a day for 2 weeks with a week off and the Oxyplatin will be given intraveniously once every 3 weeks. I will also be given antibodies every other week. The type of antibody I will be given will be determined by which subset type of cc I have. The oncologist is very interested in me getting surgery, but wants to shrink the tumor first. Nothing has been ruled out. We discussed cyberknife, PDT, RFA and other treatments and they are all on the table...IF the tumor shrinks enough.
Because the tumor cannot be seen with CT or MRI, I will have a PET scan soon and another in 2 months to check progress. I will have a portacath (sp) also put in sometime soon. My liver function was not bad, but it could be better and I was told to get off the vitamins and suppliments for the time being so my liver would have less to process.
The funny thing was that I got a "goody" bag branded with Xeloda and filled with foot and hand creams. It was like my little gift for joining the chemo club.
I dont know if I have shared this yet, but in Swedish, chemo is called "cell poison". Doesnt that just sound like fun?
I am feeling great and am completely recovered from my stomach surgery. I havent felt so good in 6 months. I wish Peter was still here because I am about to dye my hair red again and I am sure he would tease me ruthlessly and make me laugh. Off to be a red bombshell and take on Sweden and my tumor. I am woman, hear me ROAR!
36 year old patient with buckets of hope