Hi Susan, it is a difficult time in the process for you and your Mom, I am sorry for this. You're in our thoughts. My Dad was diagnosed in Nov. 08. The docs sent him home & suggested he seek out experimental treatments- so we immediately began pursuing second opinions. In lieu of making visits to the hospitals, we sent overnight Fedex packages to the various establishments (after initiating contact with the offices)- of Dad's paperwork and a CD of his scans. With this information, most were able to provide insights and provide us with an idea of treatment options they felt they could pursue (chemo/radiation/resection). I don't have any experience with Washington Univ., but if you would like contact information for the principals that I initiated contact with (specific to Duke, Sloan Kettering, Roswell, Fox Chase, Mayo Clinic, Guthrie Robert Packer, Wake Oncology, NIH) let me know and I'll pass them on. Send me an e-mail through the e-mail link to the left of the screen- so that I can respond to with an e-mail attachment.
Wishing you the best Susan.