Topic: Semi-newly diagnosed :D
Hi guys! I'm so happy to have stumbled upon this message board, I had no idea there were so many people with this like me.
Where to start? I'm Katie, and I just turned nineteen last month. After having severe pain and shortness of breath at work, I'd just assumed I'd pulled a muscle. (ShopRite sales are wicked, haha) I went to my doctor, then to the ER where I had a CAT scan. Told me I had a mass on my liver, but I'd be able to live with it if I didn't want to have it removed. I scheduled an appointment with my mom's surgeon anyway because mass = bad news to me.
The day of the appointment I threw up bile everywhere and was admitted to the hospital finally. The night I was admitted, I had an MRI (those things are scary!! haha) which eventually showed that the mass was a tumor, and it was very involved with my liver. My surgeon was too afraid to operate, so he suggested I go to Sloan Kettering, since they had much more experience with this sort of thing. The symptoms subsided after they put me on antibiotics via IV.
Since I was stable, it wasn't a hospital to hospital transfer. So I did the whole pre-admission stuff and then got admitted. So about three weeks ago, I had my liver resection done at Memorial Sloan Kettering, in NYC and stayed a week (including my birthday, but the nurses brought me balloons! how sweet of them). At the time they thought the tumor was benign, just a hepatocellular carcinoma or something. I have to take birth control for my PCOS, so they thought that's what caused it. About a week after I was released from the hospital, my surgeon called with the bad news. Being parents, my parents bugged out, but something told me the night before it would turn out to be this way, so I'd accepted the news on my own terms. They caught the cancer very early so I'm lucky to even be here! I always remind them of that when they get all mopey.
Apparently the tumor was the size of a softball (reminds me of when I was a kid and failed at softball, got hit with those in the face a lot) and he'd caught it when I was in stage 2 of the cancer. At any rate, I should be starting my chemotherapy via IV this Friday. He says the chemo is just a precaution in case they missed little cells or something, but it's 3 times a month for 6 months. That seems sort of aggressive doesn't it? This whole ordeal has just been really... different? Scary? for me and I just hope it helps me to become a better person once it's done with. It's nice to meet everyone!
Once you choose hope, anything's possible!