Topic: Hospital Communication
I am getting so frustrated with the hospital that is involved with my case. I feel like I am out in left field trying to cope with all the symptoms, pain and downward progression of this cc by myself.
I have virtually no communication from the hospital and at this point don't even know what is normal to expect for communication.
For example I have a major liver resection scheduled for Wednesday, it's Monday and I have had no confirmation on surgery, no time or preparation briefing, no check-in to see how I've fared with this last stent replacement since the procedure was done over a week ago.
I haven't had a sit-down talk with a doctor where they explain what my diagnosis is about, what to expect, how to proceed, who to contact when I'm having problems.....
I'm having all kinds of problems with this new stent, from losing 6 more pounds this week to only peeing twice this weekend and not yet today, to constant pain in the stent area and can't get the saline flush to go through the line......who am I supposed to call?????
I get such a runaround.......the first stent that didn't work took me 2 weeks to get replaced and when I was trying to call to tell them I think something is wrong with it they referred me to a pychologist, I guess they thought I was a pest or freaking out or something.
I feel like my life is on the line here and I have to beg for help and don't know who I am supposed to call.....it's been so frustrating. Is this a typical hospital experience or not???