Topic: G's update
It's been a while since I've updated. There is always another test, result, whatever lingering on the horizon.
I have tumors in my liver, peritoneal area and lungs. I take morphine daily for pain.
I've been having the chemo combination Gemcitibine & Carboplatin for the past 2 years with times off here and there. A few months ago, I started having an allergic reaction to the Carboplatin. So, I was just having the Gemcitibine by itself. Unfortunately, it wasn't able to hold the tumor growing line by itself, my CA 19-9 shot up.
So, I started on Nexavar (Sorafenib), which is a targeted therapy. I had the usual side effects of blisters on the feet, diarrhea. But I was feeling alot better energy wise than when I was on chemo. Unfortunately, my CA 19-9 numbers tripled and quadrupled and an MRI confirm that the Nexavar wasn't holding the tumors in check.
Also, the latest MRI showed a blood clot in my inferior vena cava, which sounded scary since I haven't had one before. I suppose it's common for cancer to cause these. So, I've been put on 2 different blood thinners -- one is Lovenox, which is self-injection for a few days. The other one is oral -- Coumidin which should keep clots from developing. There's multiple doctor's office visits while one is working out the exact dosage needed.
I've also been having a sympton of being distended in my belly almost all the time. I don't have any ideas as to what's causing this. The MRI doesn't show that there are fluids... Does anyone have any insights into this?
I also seem to have some fluids in my pleural area around my lungs which they are planning to drain.
Yesterday, I started my new chemo regimen of Gemcitabine & Oxiliplatin. I hope I'll tolerate it well enough and hope that it will keep my tumors in check.
It all seems like so much to keep track of... but, I guess you just get used to it.