Topic: Roma35 (Barbara)

I have to share this with all of you.  Our sweet Barbara (Roma35) after having lost her dear Dad only 11 days ago, has attended one conference (PSC) on behalf of the Cholangiocarcinoma Foundation and is in the process of attending the next one. 
From the bottom of my heart, I thank you, dear Barbara.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Roma35 (Barbara)

I have said this before, but CC is a terrible disease that brings wonderful people together.

What a wonderful gift of time and talent Barbara has given the rest of us during such a time in her life. Thank you Barbara!!

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Roma35 (Barbara)

Couldn't agree more with what Marion and Kris said!

Thank you so much Barbara.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Roma35 (Barbara)

We are so very, very proud of you, kid. Words cannot say enough as to the wonderful person you are!!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Roma35 (Barbara)

Barbara has a huge heart, a bright soul and a sharp mind. We have learned this through her stories, as she made the cc journey - hand in hand with her Dad.  Her energies are always welcome! And as always, thanks to you too Marion...

Tess

Re: Roma35 (Barbara)

Barbara is a wonderful woman.  She emailed me personally when Charlie died.  Her Dad died on the same day.  She is very special!

Carol

Re: Roma35 (Barbara)

I have met Barbara in person and she is a one of a kind! When I was going to meet her she said to just look for the short Italian woman but really she is a short Italian dynamo!

Patty

Re: Roma35 (Barbara)

Ah Shucks!! you make me blush!  No, really, I am not doing anything differently than any of you.  Everyone on ths board is so kind, sympathetic, helpful, I feel such a bond with everyone of you.  I don't want my fathers death or anyone elses suffering at the hand of CC. to be in vain.  I will try to do anything I can to help raise awareness, and fight for a cure.  I have such praise for the famly who started this foundation.  After going to the conference this past weekend, I realize more than ever, how few people understand the severity of this cancer.
Again, thanks for the kind words, and brightening an otherwise very sad day for me.
BTW, special thanks for Tiapatty for coming to my dads wake.  She made an effort to speak with my family and friends, and her kindness wasnt lost on me in the least.  It is so nice to have a fellow CC caretaker living right around the corner!
Peace everyone!
Barbara

The  Lord is my shephard

Re: Roma35 (Barbara)

Barbara,

I too have to say that I admire your strength & passion. Thanks for making the effort to attend the conference & making our presence known.  I think that all of us feel as you do that we don't want the loss of our loved ones to be in vain.  We need to raise that awareness any way we can & fight for a cure.  Thanks again.  You are a very brave, strong women.  You deserve all the praise you are receiving.  I am hoping your day is getting better & you will have as good of a week as you possibly can.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.