1 (edited by marions Tue, 12 May 2009 17:46:39)

Topic: Pauline attending World Congress for GI cancers in Barcelona

Sometimes, I have to pinch myself.  The outpouring of support for The Cholangiocarcinoma Foundation has reached a new high.  Our dear Pauline from the UK will be joining me in Barcelona for the 11th World Congress on Gastrointestinal Cancer 24

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Re: Pauline attending World Congress for GI cancers in Barcelona

Marion,

   That is such great news. I am so happy that you and Pauline will be attending together. How exciting!

  Last Friday, I had lunch with Sheila Harrison. She is from Elmira, NY, which is about an hour away, and we have communicated often. She is an activist, working on the issue of Vietnam Veterans and CC. She speaks to groups all over, warning them of the dangers of parasites in the water supply that was encountered in Asian countries, and works to help people who are applying for both veteran benefits, and survivor benefits obtain them. I gave her a stack of CC pamplets to distribute at these meetings and such she goes to, and your card, which was in the envelope, should she need more. i feel good about her having them - she will be able to accomplish much good with them, I believe.  She lost her husband 3 years ago to CC, and he was a Vietnam veteran. She fought to receive her survivor benefits, in order that the governments role in this disease in the case of veteran's be acknowledged, and she was very helpful when I applied, also. She is a lovely woman, and I hope to meet with her again. Darla has also communicated with her.

   I do feel that we are making progress in making our CC story known outside of our little circle, thanks in large part to people like you. I am so thankful that we have the foundation and for all the hours that has been poured into its' success.

  Joyce C.

Re: Pauline attending World Congress for GI cancers in Barcelona

Joyce

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Re: Pauline attending World Congress for GI cancers in Barcelona

Marion and Pauline,

I lived in Barcelona for a year, let me know if you need any travel tips.

Patty

Re: Pauline attending World Congress for GI cancers in Barcelona

Thanks Patty...Generally, there is not much time for anything but the attendance of the conference but, I am hoping to spend a few extra days there.  After ASCO at the end of this month I will be able to focus a bit more on Barcelona.  Whom better to ask then you?  Thanks again. 
Marion

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Re: Pauline attending World Congress for GI cancers in Barcelona

Hi Marion,
  I am about an hour and 15 minutes south of Syracuse. We are almost to the Pennsylvania border here in Endicott. Albany is two hours east. Do you know someone in Syracuse?


Joyce

Re: Pauline attending World Congress for GI cancers in Barcelona

Joyce,  yes, that is where my husband is from and his family still lives in the Syracuse area.  We used to go there every year to visit only in summer, of course.  Is the weather turning a bit warmer for you, now?

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Re: Pauline attending World Congress for GI cancers in Barcelona

Marion,
   Yes - the weather is getting nice - today was a beautiful spring day - lower 70's - perfect. New York State is a lovely place 3 seasons of the year - you are right - I wouldn't advise visiting Syracuse in the winter. They - worse than us - are in the snow belt - and they alwys have really hard winters - that Lake effect snow from Lake Ontario blows right across them and boy -watch out! We miss most of that here - thank goodness!


Joyce

Re: Pauline attending World Congress for GI cancers in Barcelona

This gives me whole new perspective of Upstate New York.  My husband would say, the only time he wanted to see anything resembling snow was looking at the ice cubes in the freezer. 
Glad that you are having a lovely day.
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Pauline attending World Congress for GI cancers in Barcelona

Thank you everyone for you kind words about my attending the conference in Barcelona. I will be so pleased to meet Marion who contributes so amazingly to this forum and I just hope I can be of some use in furthering the work of the foundation and highlighting the plight of cholangiocarcinoma patients in the UK and around the world.
         Very best wishes
             Pauline