Topic: Resection

My former oncologist who is  a surgeon wants me to have a resection now that the liver tumor has shrunk rather than have the SIR spheres.  He calls it an aggressive resection.  I guess the only thing I can do is have my oncologist who is recommending radiation talk to him directly.  This is hard when two drs disagree.

Re: Resection

Not a good position to be in. I guess I am wondering why the "former" is suggesting what to do. My gut feeling would be to gather up your information and have a 3rd non biased consultation done at a place where they are very familiar with this kind of surgery.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Resection

Hello Barbara, we went through the same thing with my Dad.  His oncologist initially told him that the cc wasn't responsive to chemo & that radiation & resection were not options, he told Dad to go home & seek out experimental treatments.   

While we could not locate an experiments that Dad would be a candidate for, we pursued about a dozen other opinions, some of which indicated Dad was a candidate for a radiation-chemo combo plan. After reviewing the other opinions, the original oncologist convened with an in-house surgeon & radiologist. Collectively, and against the honest position of the oncologist, they decided to pursue chemo-radiation in hopes of shrinking the tumor enough to attempt resection.  They all indicated it was an 'aggressive approach'.... but given the alternative & stats, we felt that if Dad could tolerate it- he'd take it as far as he could, as it was believed (and were told) his survival depended upon removal of the mass.

Saddly, Dad lost his fight in March, even before the radiation or resection could be attempted. But even in hindsight, I'd definitely want the aggressive docs on my side, at least that way you have options.  We were in contact with some of the best of the best when it comes to this cc (NIH, Sloan-Kettering, Duke, Mayo) & they all said no to resection.  Only one said he'd do it, and at the end of the day, that's all we needed. Dad's body told another story & he fought as hard as he could. It's a very individual journey as you well know, and so many cases unfold differently.  There are many miracle stories on this board & I pray you are one of them.

Wishing you all the best Barbara.  Keep us posted.

Best,
Tess

Re: Resection

Barbara...Specialists disagree with their approaches.  We had four different opinions to consider before my husband made the decision of moving forward with a resection. As Lainy has mentioned, you might also want to gather your records and forward them to one or two more physicians very familiar with CC.  I see this as a positive development.  You have responded so well to your treatment; another door has opened for your.  Congratulations and onwards to another promising phase with this cancer.
Good luck, tons of good wishes coming your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

5 (edited by duke0929 Thu, 21 May 2009 06:51:44)

Re: Resection

hi,
this has been one of those weeks where my nerves has gotten the best of me, i could not concentrate on anything and i seem to be walking around in a daze. tomorrow we go for lucilles scan and im frightened, i have been waiting for this moment to come and now im not sure im glad it arrived. sounds crazy i know, but i just dont know if i can take anymore bad news. i know i shouldnt be thinking like this but i cant help it. i am trying to be positive and for most part i am, i guess im just worried .  even now im trying to express what i feel and i cant. so the best thing i can do is let you know the outcome tomorrow and thank everyone for their thoughts and prayers.......ron

Re: Resection

Ron,

I will be hoping & praying that you will have good news for us tomorrow after the scan.  I will definitely keep you all in my thoughts & prayers.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Resection

Hi Ron and we are so sorry you are having to go through this mental suffering.
Cancer really redefines one's life. Sometimes the waiting is worse than what the doctor has to say. Know that you are not alone and we are all praying for good news.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Resection

Dear Ron, I can't imagine how you'd feel anything but what you're feeling.  You continue to be in our thoughts and prayers and you have many people on this site pulling for you.... you're not alone.

-Tess

Re: Resection

Ron....I don't know of anyone who could not relate to the anxiety you are experiencing presently.  Certainly, on this board we do.  You must have noticed our joy when this cancer is kicked in the butt.  I am wishing and hoping for the best test results coming your way and remember as Lainy had mentioned, we are behind you, in front of you, and beside you. 
Crossing my fingers and toes for the greatest news, ever.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Resection

Hi Ron,

Just wanted to wish you and Lucille all the best for tomorrow. I know what your going through with the waiting around and how worrying it gets, we've got an app for Tuesday next week with the specialist. I will keep you both in my thoughts and prayers.

Best wishes

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Resection

Gavin....good thoughts and the warmest wishes coming your way.  Please, keep us posted about the visit.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Resection

Blue Cross turned down the SIRT spheres and I was told to buy the book, "How to fight the Insurance Companies and Win" and appeal it.  Have any others used this book?  Looks like my only avenue now is resection and my oncologist wants me to see his in-house surgeon to get his opinion.  Hard to get excited about anything since the insurance companies seem to be running the show.

Re: Resection

Barbara,
I am furious over your insurance right now. Best of luck fighting the dogs.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Resection

Hi Barbara, what a frustrating road block for you! A couple months back when I was speaking with an insurance specialist about payments for 'alternative' procedure, she indicated that each hospital works differently when it comes to working with insurance providers. A doctor can put together a letter of necessity, arguing for why a patient should receive a certain service, substantiating the necessity for the procedure. This can be performed as an appeal if the patient is initially denied. Alternatively, there may be other close proximity hospitals whereby the treatment may be covered. Just a thought....

You're in out thoughts Barbara!

Tess