Re: Remaining hopeful during difficult times
Dear Danielle and Jim,
I am sending you both hugs and sending God my prayers for you.
When my dad (also a Jim) was hospitalized...the first time, it was wildly botched. And dad was discharged to a 'nursing home' for rehab. Not a good decision...IN OUR SITUATION...as dad was misdiagnosed. Dad landed back in ER, and hospitalized. They were going to discharge dad again, until I spoke loudly against this decision and my husband (another Jim) backed me up. We got our requests heard and the doc came back, tail between his legs, apologizing profusely and calmly told us dad was full of cancer, though they didn't realize it was CC initially. They decided they would release him and bring him back for some biopsies...and the doctor already signed the discharge papers...which, as anyone knows, creates an insurance nightmare to get reversed. I was visited by the hospital social worker and someone from the hospital utilization review board who heard I was concerned about dad not being strong enough to be discharged prior to the biopsy.
I was strongly encouraged by these two gentleladies to file a grievance which would then be reviewed by a committee in the Mpls area thus allowing dad the opportunity and time to get his platelets up in order to have his biopsy. I received word from the review committee that based on the info they received, dad was in no shape to be discharged from the hospital.
Now, this was our situation...and every situation is different. However, I can't help but wonder if the hospital Jim is at has a similar policy. Also, a good social worker would/should be able to assist you with temporary assistive devices that you may need if he is discharged to your home.
My dad was discharged from the hospital and went to a different nursing home for rehab/physical therapy for awhile. This situation was wonderful. Dad was happy, and I was able to get things readied for him to come to my home upon his release from the nursing home.
Danielle, I know that you have so much on your mind, and a strong need to be by your husband's side. Do you have anyone-sister, brother, cousin, friend-that could help you with some of your needs, to speak on your behalf to get things arranged while you care for Jim? Like everyone else, I am concerned about the bed sores. Dad had horrible sores all over his body from the first nursing home. And I am so sorry you have to see your husband suffer so much.
Please take care of yourself. And I am so glad that you found this site. It was a godsend for me while I cared for my dad. You have, no doubt, already found great advisors and cheerleaders.
I wish you both peace,