Topic: Hello to everyone
Let me introduce myself. My name is Ron and I feel lucky that I live in Scotland.
I have looked through all of the postings and, to be truthful, I am not sure if I really belong here. I find everything that is written shows a great degree of knowledge and I find I am learning a great deal. I seem to know very little about my condition, my stats., and my prognosis. I feel as though I have just wandered through it all and come out the other side.
In June, my GP referred me to the local hospital for an ultrasound scan to confirm I had gallstones. This was done, but the next thing I knew was that they saw an abnormality on my liver and I was to have a CT scan. That was when I was told I had a tumour on my liver, that I would be facing a number of tests to determine the nature of the tumour and may require a transplant. I was referred to the main Scottish transplant unit in Edinburgh and was assured that the one thing they knew for sure was that I would not be having a transplant. If it proved to be a primary cancer then I would be a candidate for a liver resection. Well, the tests all ran through and on 18 August I was operated on, had a great recovery and on 22 August was released from hospital. Everyone is very happy with my recovery and the surgeon has confirmed that the biopsy showed I had an intrahepatic cholangiocarcinoma. He is satisfied that it was completely removed, with negative margins, and that since the gallbladder has also been removed, the source of the tumour is gone. I will not be needing chemo or radio therapy but will be scanned on a regular basis since this type of cancer is prone to recurring.
I suppose it is my prognosis that I am most concerned about. On the face of it everything is fine but if it does recur, I will be back to square one regarding whether it can be removed by surgery. I am 56 but none of the doctors will commit with any confidence that I will see my 60th birthday, when I had planned to retire. I would be really interested to learn if anyone has had a similar history and what the future is likely to hold.
All the best