Topic: Any thing is possible now

Dear All members.

I am new here My Brother name Mr.Iftikhar Ahmed age 43 years.
He had been working in Jeddah-Saudia Arabia Since last 15 years. IN LAst August 2008 Diagnose Jaundice Total Biluribbon was 16 Drs adviced him should admit and after ultra sound and ERCP they Found a blockage in Bil Duck and suppose may be its Tumor and its Cholangiocarcinoma.
We decided should back to Pakistan and we will go to Singapore India or any other good place but unfortunately when he was coming Dr.Inserted 2 Metallic Stent for Bile passing ( Now I have read stent place in last when Doctor decided nothing is possible). IN Pakistan lot of Doctors advice should go to India there is good facilities for Liver transplant and surgery so They went to India Apollo Hospital Chennai In October. Doctor took Surgery but they failed in operation and after that they decided now he is better and can go his home country.IN March 2009 Again Jaundice and after CT scan Structure increased and again blockage so IN Pakistan Doctor again insert third stent for bile passing but recently LFT shows problem in bile passing and jaundice is continue at same level 12 to 13.
Now I requested all of you member specially who are leaving in USA and Uk Please contact me and discuss My Brother case with your docotrs and take advice now what is possibilities if they think still any thing is possible we can move any where but should be confident that what can be happen now?
I shall be very thnak full all of member efforts please do some thing for me and for my brother you all are hope for me and my Brother.
Please reply me I can send you all reports through email.
theasifiqbal@gmail.com.

Please contact me and help me.
Asif Iqbal

Re: Any thing is possible now

Asif....I am so sorry to hear about your Brother but, I am happy to see that you have found us.  Do you have all medical records availble such as, blood tests, CT scans, doctor's reports, etc?  If so, then you might want to get in touch with Dr. Jenkins.  Others may have suggestions, also.
Dr. Roger Jenkins
Lahey Clinic
Burlington, Mass
(781) 744-2500
Julie Doyle
Administrator

Good luck and keep me posted.  Let me know if you need additional help. 
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Any thing is possible now

Hello Asif, we are very sorry to hear what your family is going through. I found the following doctor to be helpful from a distance....

Dr. Ronald DeMatteo
Department of Surgery
Head, Division of General Surgical Oncology;
Director, General Surgical Oncology Fellowship Program
Phone; 212-639-5726
Online Bio: http://www.mskcc.org/prg/prg/bios/542.cfm

Mailing address: Dr. Ronald DeMatteo
Attn (Receptionist): Betty
Room C8911275 York Ave.
New York, NY 10065, USA

We found DeMatteo's office willing to review Dad's records and scans, without having to travel there. They also told us that we had to send the scans on CD - through postal mail, as the resolution would not transfer appropriately when sending the scans through e-mail. They also recomended that we send them with a tracking number.

Wishing your brother all the best,

Tess

Re: Any thing is possible now

marions wrote:

Asif....I am so sorry to hear about your Brother but, I am happy to see that you have found us.  Do you have all medical records availble such as, blood tests, CT scans, doctor's reports, etc?  If so, then you might want to get in touch with Dr. Jenkins.  Others may have suggestions, also.
Dr. Roger Jenkins
Lahey Clinic
Burlington, Mass
(781) 744-2500
Julie Doyle
Administrator

Good luck and keep me posted.  Let me know if you need additional help. 
Marion

marion
Thanks for your reply I am really very happy to see ur reply.
If you can send me email address of Dr. Roger Jenkins I will send him as well if you need. I can send you through email all reports.
my email is theasifiqbal@gmail.com
Thanks
Asif

Re: Any thing is possible now

Asif.....Phone: (781) 744-2500  Fax.: (781) 744-5743.  You will be in touch with Julie Doyle, the administrator for Dr. Jenkins. 
Good luck,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Any thing is possible now

Dear Asif,

I don't know any other doctors to recommend, but I just wanted to say that your are a wonderful brother. I send you all my best wishes, and will keep you and your brother in my prayers.

Kristin

Peace, hope, and healing to all!

Re: Any thing is possible now

Mario and other members.

I want also one thing that here in Pakistan and India Doctors are saying the life of Cholangiocarcinoma patient is 12 to 18 months maximum and my brother has passed 12 months after first diagnosed so they are are saying its enough now your brother life is not more than 4 to 6 months. So I requested all of you can you let me know exactly or atleast as per your expereince and knowledge how much is life expected of cholangiocarcinoma patient and specially after reading my brother case for him.
Thanks all of you.
Regards
Asif

Re: Any thing is possible now

marions wrote:

Asif.....Phone: (781) 744-2500  Fax.: (781) 744-5743.  You will be in touch with Julie Doyle, the administrator for Dr. Jenkins. 
Good luck,
Marion

Thanks

Re: Any thing is possible now

Dear Asif
as per your letter the way it looks your brothere might have diffuse metastasis in the liver and lymphnodes which might have been the reason for aborted attempt of surgery at chennai. if you can send me the reportsof  ct /mri /mrcp/ any biopsy with HPE reports  then i can comment on the case . any way  my good wishes r with your brother in this dark arena of the disease . i hope for a good light  of hope at the end of the tunnel of cc
Dr.Mahipal reddy

Re: Any thing is possible now

mahipal33 wrote:

Dear Asif
as per your letter the way it looks your brothere might have diffuse metastasis in the liver and lymphnodes which might have been the reason for aborted attempt of surgery at chennai. if you can send me the reportsof  ct /mri /mrcp/ any biopsy with HPE reports  then i can comment on the case . any way  my good wishes r with your brother in this dark arena of the disease . i hope for a good light  of hope at the end of the tunnel of cc
Dr.Mahipal reddy

Dr.Mahipal reddy,

Thanks for reply and prayer for my brother.
I can send you all the reports through email.
Kindly contact me through email at
theasifiqbal@gmail.com
or send me your email.

Thanks
Regards
Asif

Re: Any thing is possible now

Dear Asif,

When doctors say that your brother will live only 4-6 months, please remember that doctors aren't God-- they don't KNOW how long we will live, they can only say what usually happens. Doctors once told me I had 6 months to live, but that was three years ago.

Sending all my best wishes to you and your brother!

Kristin

Peace, hope, and healing to all!

Re: Any thing is possible now

Dear Asif  my email addresse is mahipal33@gmail.com

Re: Any thing is possible now

Kristin wrote:

Dear Asif,

When doctors say that your brother will live only 4-6 months, please remember that doctors aren't God-- they don't KNOW how long we will live, they can only say what usually happens. Doctors once told me I had 6 months to live, but that was three years ago.

Sending all my best wishes to you and your brother!

Kristin

Dear Kristin,

Thanks for reply and Pray. Yes GOD can do any thing and I hope GOD will help me for longer life of my brother.

Asif

Re: Any thing is possible now

mahipal33 wrote:

Dear Asif  my email addresse is mahipal33@gmail.com

Dr.Mahipal reddy,

I have sent all the reports on above ur email.

Thanks
Regards.
Asif

Re: Any thing is possible now

Dear asif
i have send you an email giving my opinion about your brother. No one can tell you as how long any body survives. there are many factors attributed to life and death. CC In india and pakistan is rare . its the very old  psyche  and old teachings  in 80s and 90s. there are lots of changes in the management  and early detection of the case which cures or prlonges the life  un heard in india and pakistan  by yesterdoctors. Iam the living example with CC  detected in 2007 july resected in march 2008 and living with perfect health and work.  i had trekked 15000 ft nathullpass last oct08 and even till this day doing marathon walks of 25k every month  and mind you never rested  but for the 4weeks during surgery . its the attitute that is every thing . be positive .  Dr Mahipal reddy

Re: Any thing is possible now

Asif,  I have not been on this site in a while but just noticed you had asked for Dr Jenkins email address.  His email is:  Roger.L.Jenkins@Lahey.org      I am also his patient...and fellow cc survivor!  He and his staff are miracle workers.  Best wishes to you and your brother.   debbie

Re: Any thing is possible now

Hello Debbie....it is always nice hearing from you and thank you.

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Any thing is possible now

Thanks Marions....you are an amazing woman and I would like to thank you for all you do for so many on this sight.  We are all blessed to have you. Hope life is good for you!  Thank you!    Hugs, debbie

Re: Any thing is possible now

mahipal33 wrote:

Dear asif
i have send you an email giving my opinion about your brother. No one can tell you as how long any body survives. there are many factors attributed to life and death. CC In india and pakistan is rare . its the very old  psyche  and old teachings  in 80s and 90s. there are lots of changes in the management  and early detection of the case which cures or prlonges the life  un heard in india and pakistan  by yesterdoctors. Iam the living example with CC  detected in 2007 july resected in march 2008 and living with perfect health and work.  i had trekked 15000 ft nathullpass last oct08 and even till this day doing marathon walks of 25k every month  and mind you never rested  but for the 4weeks during surgery . its the attitute that is every thing . be positive .  Dr Mahipal reddy

Dear DR.Mahipal

I am really very thankful to your detail answer and very positive thinking to hope fully for my brother.I pray for you GOD will give you long and healthy life.

Regards
ASif

Re: Any thing is possible now

debrah wrote:

Asif,  I have not been on this site in a while but just noticed you had asked for Dr Jenkins email address.  His email is:  Roger.L.Jenkins@Lahey.org      I am also his patient...and fellow cc survivor!  He and his staff are miracle workers.  Best wishes to you and your brother.   debbie

Dear Debrah.

Thanks for your reply and help me for DR.Jenkins Email address.

Best Regards
Asif

Re: Any thing is possible now

you are very welcome...wishing you the best  , deb