Topic: My treatment regime...aggressive

I went to the big university hospital for my new regime. I met a new ocologist who did his best to steal my hope. Then, when I was too happy and cracking jokes on my cancer, he asked my husband if I was always like this. Hans said ALWAYS. I had to break it down to him that I KNEW the statistics and what would likely happen,  but not what would definately happen. I told him I wasnt looking to erradicate my cancer, just shrink it enough for surgery or maintain it long enough for the new treatments to work down the pipeline. I told him I would have hope until the doctors said there was none and that I expected the doctors to tell. Then I looked at him and basically challenged him to tell me there was no hope, which of course he couldnt do. When we met the today, it was much better and Hans thought he actually had a twinkle in his eye. I am still annoyed with him because he got me so upset that I cried which made my mother cry.

Anyway, my new treatment regime is Cisplatin and Gemzar, three weeks on one week off. Let me clarify...both drugs every week, not cisplatin only on week one which seems to be the standard protocal. They still have not made up their mind about the Erbitux, but I feel it seems more postive they will add it than not.

On a side note, I decided to name my tumor Leroy so when I tell it how unwanted it is and how it must leave I can call him by name.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: My treatment regime...aggressive

Kris...why was it decided to switch the regular protocol for Gem/Cis?  Definitely, Leroy will have it coming, now. 
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My treatment regime...aggressive

Oh, Kris, I was looking for that Pink sequined robe and now I see you are wearing it! Give Leroy a punch and knock him out! I am wondering though why a man's name?????? I will have to think now of a name for mine! Can't give Teddy's a name as it jumps around too much. Oh, I know for him, Jumpin Jack and we shall call him Jack.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My treatment regime...aggressive

Ok, as to Leroy...I sincerely hope I do not offend anyone, but Leroy sounds like someone who doesnt have all his manners. I didnt invite the cancer to come back, so it is definately a rude one. Why a man? 1. Arent all of womens problems caused by men? 2) I think women are more stubborn and I didnt want my cancer to get any ideas!

Marion, as to why they want to pump me full of cisplatin, I dont know. My only guess is that we were all disappointed in the last regime's results and the growth of the tumors, and the general size of Leroy made them think that this could be the last shot at it and to poison him good. I did tell my doctor that I am willing to do and try anything and that the possible side effects (both permanent and temporary) were preferrable than death. I basically begged for a very aggressive treatment. I think when they last saw me, I was running up the stairs to the oncology unit, laughing and in general good health (except the low blood count) they decided I had enough strength and energy for the increase.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: My treatment regime...aggressive

Kris,

I just love you.  As you know, my life is pretty sad right now, but you made me smile today, which I definitely need!

You are going to kick Leroy's behind!!!!

Amy

Re: My treatment regime...aggressive

Kris,

I love your attitude and you never disappoint us.  Leroy doesn't stand a chance!!!!!  smile

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: My treatment regime...aggressive

Kris,
  I love the name - it is from bad,bad Leroy brown, baddest you-know-what in the whole damn town? Very appropriate, I say!


Joyce

Re: My treatment regime...aggressive

Kris,

Dad is on Cisplatin and Gemzar also.  2 weeks on, 1 off. 

xo
kay

Re: My treatment regime...aggressive

You rock Kris...Kick Leroy's a$$!

               You always make me wanna get up and cheer!
                                        Love your spirit, Elicia

Re: My treatment regime...aggressive

Kris,

Great positive attitude! Good luck with the new treatment regime and I hope it gives Leroy a good kicking!!

Best wishes

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: My treatment regime...aggressive

Kris,
You remind me of my friend Billie and her husband Mike. Mike has had adenoid cystic carcinoma, a very rare disease, for over 35 years already. Four different times, he has beaten a 5-year prognosis. Their biggest and best weapons seem to be laughter and humor. I can just picture you in your high heels kicking Leroy down those stairs you were running up and laughing as he falls, tumbling down many flights. Leroy looks tough and intimidates a lot of people, but with one feminine flick of your ankle, you send him packing. Kudos to you!
Louise smile

12 (edited by Lalupes Wed, 16 Sep 2009 06:14:54)

Re: My treatment regime...aggressive

I'm so glad I'm feeling feisty enough again to come onto other people's threads, rather than just my own - now I know what Jolene meant about giving the beast a NAME. big_smile

Kris, you are so, so inspiring!!  I send loads & loads of good wishes & positive thinking winging your way.

I gave my sister a stuffed-toy dog during her 1st week in hospital.  He's a German Shepherd & she's named him Billy D. Rubin.  (She called him Deefer Dog, originally, but since all the drains have gone in, the D has moved to become his middle name).

“When it is dark enough, you can see the stars." - Ralph Waldo Emerson

Re: My treatment regime...aggressive

Kris, you are a STAR! Absolutely inspirational & an example to us all.


Get those metaphorical stilletos on and stamp on leroy hard. 

You take good care, Val x

Re: My treatment regime...aggressive

Kris,

You are an inspiration! NEVER give up hope! When my mother was diagnosed with CC it had already consumed 75% of her liver.  They did this exact regime with her - 3 weeks on Cisplatin and Gemzar given at the same time and one week off.  Wouldn't you know, her cancer shrunk enough to have it surgically removed under this regime!! The doctors were absolutely amazed by how much her cancer had shrunk!  She had also had some chemoembolizations done before that, as well.  Anyway, keep looking up and I pray this combo works wonders for you!

Re: My treatment regime...aggressive

Hi Kris,

Reading your post made me feel like I had a twin in Sweden. I am always making jokes with the doctors and nurses at the hospital.

Two weeks ago I complained to my doctor that the radiation treatment they did on my rogue tumour on the pelvic bone did not cause the side-effect they had promised!!! The side effect I was most excited about was losing all my pubic hair without having to go through the agony of waxing! So I asked her to tell the radiation oncologist to stop making promises she couldn't keep. Anyway, my doctor just looked at me and told me to stop making her laugh!!

During the same meeting with her, I looked her square in the eyes and told I was going to be the patient that will beat her odds.

As long as there is always a clinical trial for me to try I will never stop hoping.

My biggest fears is running out of trials, and dying without providing valuable medical information to help the cause.

All the best Kris! and keep on laughing!
Mel

Don't let cancer ruin your day!

Re: My treatment regime...aggressive

I love the name! Great attitude. (My husband's name is Hans as well - I paused there for a minute when I read your husband's name!)

Sock it to Leroy!