Topic: Bile duct cancer in person with Down syndrome
My 49 year old brother was diagnosed last year with bile duct cancer. He had a metallic stent placed in his bile duct. His jaundice and itching were relieved with the stent placement.
He has Down syndrome and because he was feeling better, he thought he was cured. We have never used the cancer word with him. He has been through several family members dying of cancer and it scares him.
Now his jaundice and itching are back. I assume the stent is no longer functioning. He can barely tolerate getting blood drawn without being sedated.
I am wondering if anyone else has taken care of someone with Down syndrome and bile duct cancer and if they have any specific recommendations for how to help.