Topic: Strange test results - good or bad?
A brief history: Initially was diagnosed with CCA in 9/2009 and attempted Mayo Transplant Protocol. I was enrolled in that protocol until the very end when a last minute CT scan showed peritoneal mets and laparoscopy confirmed. All prevous imaging had seen only the small Klatskin tumor so we thought we were ok for protocol only to be ineligible at the very end of testing. I was then sent home and started Gemzar/Oxaliplatin in the first week of October. Last week, my CA 19-9 came MUCH more elevated than it was before treatment so my Oncologist ordered another CT scan.
This time (only 2 months later!), the scan was CLEAR. There was no primary and no mets shown on this scan whatsoever (same test, same contrast, etc). We are absolutely elated about that but wondering why the tumor marker has risen while the imaging has improved.
I want to take this as a piece of very good news, but still am concerned about that tumor marker and wondering if we might have missed something. What do you all think?