Topic: I think this is good news

The doctors have run all the tests to determine if the cancer has spread beyond the liver.   All the tests have come back negative; a huge relief for us.   We can only view this as our first good news in a while.

We go see our first surgeon, a Dr. Steiber at Dekalb Medical Center in Decatur GA, on Monday afternoon after the MRI on Monday morning to start discussing surgery options at this point, if any.

I am still trying to get an appointment for her to see an oncologist at Winship (Emory Hospital).    I am getting a little impatient and frustrated that I made the request on Monday and here it is Wednesday evening and we havent heard anything.    Does anyone have any advice?   I don't want to be "too pushy" because I don't want to be put "on the bottom of the list" to be seen.

I've read good things about the doctors and care at Winship (Emory).   I know nothing about this Dr Steiber we're seeing on Monday afternoon, other than what I can find at this site...

http://www.vitals.com/doctor/profile/1235194101

Any opinions or advice on how to deal with Emory will be appreciated.   

Best wishes to us all.....

Re: I think this is good news

That is great news!!!! I am so happy surgery is a strong possibility. Yippy.

My technique is always to say it with a smile. You cant do it on the phone, so I then use the "I am so sorry to be so pushy. I am just very scared and stressed and ...blah blah blah." It is all true and showing that you arent just some nasty person, just someone doing their best while scared helps get them in your corner. It is true the squeaky wheel gets the grease, but you always catch more flies with honey than vinegar.

I too have heard good things about Emory, but I cant remember where or I would point you in that direction. I think having a good relationship with a doctor and trusting the feeling you get with him or her the most important. Your gut will let you know when you meet him.

Best of luck.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: I think this is good news

gtm...Did you try to call Dr. John S. Kauh (404) 778-1900 wci.referrals@emoryhealthcare.org?
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: I think this is good news

Marion....  no I guess I was trying to follow "standard" procedures as outlined by the website.    I will call/email today.    Thanks for the advice.

Re: I think this is good news

About an hour after I sent en email to wci.referrals@emoryhealthcare.org stating that we've been waiting since Monday (now Thursday) to hear from them, I got a phone call from Angela at WCI.   

I ended up hand carrying all of my wife's records over to Winship (Emory).   So now she's "in the system".   We're supposed to hear by Tuesday or Wednesday when her appointment will be with the oncologist.

Re: I think this is good news

Well that's a good outcome and speedy, let's hope you hear about the appt.soon.

Sending my best wishes as you start your journey,

Katie

Re: I think this is good news

I am glad that it worked.  All these rules we have to abide by to just "get in to the system". 
Good luck,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: I think this is good news

Sorry... I have one more question... wellm for now at least.

On Monday we're going to see this Dr. Steiber at Dekalb (Georgia) Medical Center.   What questions should I ask him?   I am thinking...
1) How many cases of cc have you dealt with in the past?
2) How long ago were they?
3) How many times did you decide a resection was not possible?
4) Of the resections you did , how many were successful?  How many were not?
5) What is your process?  Do you, the oncology radioliogist, and the oncologist as well as whomever else sit down together with us to discuss this case and determine the best course of action?

Can anyone else think of additional questions to ask during this "interview" with the surgeon?

Re: I think this is good news

gtm....Soliciting questions from the experienced members on this board is exactly what makes this site so popular.
Your questions are great.  I would add:
Is a resection possible?
What would it entail?  (Removal of gall bladder, small intestines, etc?)
How many of these opertions have you performed?
How are these patients fairing, presently?
Do you generally recommend chemotherapy post surgery?
That is all I can think of but, I am sure that others will have more to add.
Good luck,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: I think this is good news

Hi gtm,

Good news on the test results! I hope you manage to get the app quickly and I hope that goes well.

Best wishes

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: I think this is good news

Good luck getting a swift appointment!!

"Time may be a great healer, but it's a lousy beautician."

Re: I think this is good news

All....

Being the squeaky wheel but polite while scared yet undestanding about other people's needs, worked.

We have an appt with a Dr. El-Rayes at Winship (Emory) on Monday.    So on Monday we have an MRI at 10:30A at Dekalb Medical Center, Dr El-Rayes at 12:30P and Dr Steiber (Dekalb Medical Center Surgeon - second opinion) at 3:30P.

Doctor Kauh at Emory is on vacation next week.

Monday will be busy.

Re: I think this is good news

Good News!  A Monday that is busy but productive!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: I think this is good news

YES! Result. I am glad the honey vs. vinegar approach worked. Are you getting an appointment with Dr. Kauh when he or she gets back?

Hope you not only get some solid answers and plans but also that "feeling" when you meet the right doctor.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: I think this is good news

Kris,

From what I was told, Doctor El-Rayes is the head of the Hematology and Medical Oncology department at Emory.    Collette (the one who does the scheduling) said that the way they work is that the doctors discuss the case and make recommendations for treatment.

All I can say is that I hope something happens quickly.   The fact that this is an aggressive cancer makes me want her to start treatment today.