Topic: Had a great meeting/scans/etc with my docs Monday and got good news!

It was a nerve racking day before and day of until we met with my chemo oncologist. We were still recovering from all the time zone changes and jet lag from our fantastic Alaskan cruise. I'll tell you more about that in another post or you'll see it via FaceBook.

Anyway, so I get through the CT and get to my oncologist and as many of you recall he's like most oncs. He wants to be truthful but doesn't want to fall into optimism. Well, he pointed out my CA19-9 is down for 2 or 3 consecutive reads. From 981 (highest so far) to 551! Yay! He also feels more cautiously optimistic about the possibility of beating this down and possibly looking at talking about surgically removing my omentum!

I did leave with a 2 shots a day regimen for a blood clot next to my liver but I guess they see it occasional with liver tx patients. Either way, I'm happy as heck with the results.

With love and light,

-leo

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

YEA!!  We love the news, Leo!  Just wonderful.  Mmmmm maybe you need more cruises!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

Fantastic report after returning from the great Alaska cruise.   You are on a roll, Leo.  Keep it up.
Blood clots are not uncommon.  You may read up on it:
http://en.wikipedia.org/wiki/Trousseau_ … malignancy
Best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

Leo,
I am very happy for you. What wonderful news.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

Thanks everyone. You are all such a source of inspiration for me after so many times when my docs have been negative despite not even having had any experience with metastasis post liver transplant. Even my chemo doc mentioned that in healthy post liver tx patients (read: no cancer) they see clotting in a pretty decent percentage. I like that vs more mets. big_smile

Love and light to you all my friends,

-leo

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

Hi Leo,
Welcome back from your trip! We're all so hopeful for you - glad your news was so positive from the oncologist today!
Ashley

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

Leo:  From a guy who just got some similar good news after NOT taking an Alaskan cruise to one who got his good news after TAKING an Alaskan cruise---Hey!  I'd have preferred to have had the cruise, I think.  Congratulations on the success and renewed hopes.  May the Lord continue his blessings!!

Re: Had a great meeting/scans/etc with my docs Monday and got good news!

Hi Leo,

Great news indeed and thanks for sharing it with us all! Here's hoping the good news continues for you.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.