Topic: TEDDY TIME

Just got home from the ONC and he is absolutely amazed and astounded as EVERYTHING is clean except for the one tumor that is growing. The ONC is setting up an appointment with the surgeon I had, to see what he feels we should do. It has to come out that is for sure. It's right below the right kidney. What he is amazed about is that CC does not follow this pattern. It is CC but so weird because it should have  spread by now or gone to the liver but with Teddy is just comes in spurts and has not met. ONC is really stumped and we feel lucky! Teddy has been on Ibuprofen round the clock for pain that we thought may be caused by the metal stent in his right ureter but the ONC feels it's from the tumor. Every one of his LAB counts is perfectly normal except the CA19 which is now up to 1148. But we know there is Cancer and that is what is causing that count to climb. Next installment after we see the Surgeon, no date yet.  Stay tuned........

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: TEDDY TIME

Lainy,

What next.  This is a strange turn of events.   But then again nothing about CC makes much sense, does it?   If it isn't one thing it is another.  I am thinking of you both and hoping for the best.  I'll be waiting for the next installment.  smile

Much love and hugs to both of you.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: TEDDY TIME

Hi Lainy,

Glad to hear that all is clean with everything bar that one tumour. Grrrrrr to that one tumour! Hopefully Teddy will get an app very soon with the surgeon and that you get the plan in place to deal with that tumour. You know I'm thinking of you both and staying tuned for the next installment.

My best wishes to you and Teddy.

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: TEDDY TIME

Thanks for the update Lainy,interesting that Teddy is always a cafe subject,I love that!                                        Janet x

Re: TEDDY TIME

Teddy is indeed keeping those doctors on his toes. I hope the surgeon gives you the news you are looking for. Until then, I am sure Teddy is enjoying that golf.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: TEDDY TIME

Kris, he sure is, once a week on the greens, hurting or not. He is unbelievable! The DOCs just can't figure him out. The ONC said, "we know you have CC but it is behaving like you don't".  I really think we are headed for the surgery as every time I brought up cyber knife or Nanno knife (reminds me of Robin Williams) the ONC says, I want you to see the Surgeon first and see what he says. Hope you are doing well, we think about you so very often.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.