1 (edited by marions Sat, 19 Jun 2010 15:47:16)

Topic: ASCO 2010 Chicago

The ASCO (American Society of Clinical Oncology) is the largest conference attended by members of the Cholangiocarcinoma Foundation.  As mentioned previously, Mark and I attended the 4 day event. 
Has anyone ever been at McCormick Center, Chicago?  It is HUGE in fact, where it not for the steps, small commuter trains would be helpful for transportation purposes.  I have long learned to leave at home the fashionable shoes and replace it with some sensible footwear. 
I believe, around 40 thousand people were in attendance and at times, it seems as if we are all heading in the same direction, simultaneously.
The Patient Advocate Lounge provided by ASCO is a real sanctuary for weary heads and hurting feet.  Here we can mingle with other advocates and share knowledge and experience and in my case learn from those old-timers very familiar with the advocate programs. 
These for days always are hectic, tiring but oh so enriching, too. 
Mark and I had a full schedule and I will try to recall a few of the things most pertaining to all our members.
I had to attend several meetings mandated by specific task forces however; it left plenty of time for the other interesting sessions and poster presentations.




Patient and Survivor Care:

I attended an Oral Abstract Session re: Neulasta the prevention of pegfilgrastim (Neulasta) -induced bone pain something discussed previously on our board. 

Complications associated with low white blood cells counts can lead to dose reductions and delays in chemotherapy.  Neulasta boosts the while blood cell count and helps reduce the risk of infection for those patients receiving strong chemotherapy.

A significant side-effect of Neulasta is the associated bone pain which can be severe and ultimately can cause chemotherapy to be discontinued or lessened in dosage.

This trial was conducted with 510 patients including 17 separate sites.  Patients were given a dose of 500mg of  Naproxen, nonsteroidal anti-inflammatory drug. It works by reducing hormones that cause inflammation and pain in the body. 
The study concluded that those patients with no known contraindications would benefit greatly from the above recommended dosage of Naproxen.


Trials in Progress Poster Session:

This is a 4 months pilot study to come: This study will be based on the observance of cancer survivors struggling with cognitive, effective, and physical adaption.  It will include patients and caregivers.  It will be an experimental mixed method designed to integrate intervention results with experience descriptions.  Eligible adult patients-caregiver couples, who are planning first time cancer chemotherapy for new or recurrent cancer, will be randomized to the intervention arm.  This arm will provide a weekly introduction and educational telephone session with a research staff member.  Couple members will be provided with a personal health journal in order to record the various aspects of their personal cancer experience. 
The outcome will be compared to the randomized standard of care assigned couples.

I am hoping to see a significant increase of cancer support by the medical staff for those patients undergoing chemotherapy.   

Oral Abstract session

A randomized, controlled trial of more than 400 cancer survivors and the effectiveness of Yoga.

This study measured the sleep quality, fatigue and quality of life for cancer survivors. 
Patients underwent a 4

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: ASCO 2010 Chicago

Hi Marion,

Do you know when the ABC03 trial is recruiting? or any more information on it.

Kind regards

Devoted Daughter to the most wonderful Dad a girl could ask for.  Sadly lost his battle on 19.02.11, peacefully in the arms of Mom and I.  As requested by Dad "we will keep on smiling".

3 (edited by marions Sun, 20 Jun 2010 17:07:30)

Re: ASCO 2010 Chicago

Andi.....I will ask Dr. Valle within the next few days.  In fact, Dr. Valle has offered to conduct a web conference on our forum re: this specific trial.  I will keep you posted on any further developments. 
Best to you,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: ASCO 2010 Chicago

Thank you so much. 

Kind regards

Devoted Daughter to the most wonderful Dad a girl could ask for.  Sadly lost his battle on 19.02.11, peacefully in the arms of Mom and I.  As requested by Dad "we will keep on smiling".

Re: ASCO 2010 Chicago

Hi Marion,
Thanks for going on this trip and for the report!
We too are interested in the ABC trial info. Is it up on the Clinical Trials sites yet?
Thanks and hope you are well,
jackie
p.s. My mom is still on gem-cis but had to take a break for a while. Her side-effects are going up all the time, and she is feeling more joint pain and more nausea- from what, we do not yet know. It will be scan time soon... It has been nine months since her initial diagnosis of "likely" cholangio, stage 4 (bone mets)- that, in itself, is remarkable given the dire prognosis for this disease. We pray that the next scans continue to show no new mets and no growth in the tumor.

Re: ASCO 2010 Chicago

Marion,

Thanks for the ASCO info.  Yes, I have been there, but it was years ago before the remodels & add-ons.  It was McCormick Place back then.  We did antique shows down there and it seemed big then.  Can't imagine it now.  Thanks again for all you do for the cause.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: ASCO 2010 Chicago

I have been in touch with  Miss Sharon Hughes, BTC Trials Co-ordinator
at Cancer Research UK & UCL Cancer Trials Centre and this is the reply I got regarding the ABC03 trial

I am sorry to hear about your father

Devoted Daughter to the most wonderful Dad a girl could ask for.  Sadly lost his battle on 19.02.11, peacefully in the arms of Mom and I.  As requested by Dad "we will keep on smiling".

Re: ASCO 2010 Chicago

Hi Marion,

Thanks for all of this info on the ASCO meeting and for all of your efforts with this. Sounds like you had a busy time there, and I do hope that your sensible footwear over fashionable ones helped!

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.