• Registered: Fri, 12 May 2006
  • Posts: 8,173

Topic: Sterotactic Body Radiotherapy for Hepatocellular Carcinoma and Intrahe

My Radiation Oncologist, Dr. Parag Parikh,  told me that he is actively seeking participants in his clinical trial of Sterotactic Body Radiation Therapy (SBRT), entitled "Sterotactic Body Radiotherapy for Hepatocellular Carcinoma and Intrahepatic Cholangiocarcinoma," numbered  "Siteman Cancer Center Number 09-1345."   He is at Washington University Medical School, affiliated with Barnes/Jewish Hospital in St. Louis, MO.   The number he gave me for calls was 1-800-600-3606.  The web address I believe is info@ccadmin.wustl.edu.   He welcomes prescreened callers whose cancers have been determined to be non-resectable, preferably but not necessarily having been treated with one of the standard HCC or ICC chemotherapy regimens, and who have no metasteses or lymph node involvement.

Posted on behalf of KentuckyJack

Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER
  • From: Sonoma, California
  • Registered: Sat, 07 Nov 2009
  • Posts: 10

Re: Sterotactic Body Radiotherapy for Hepatocellular Carcinoma and Intrahe

Marions: Perhaps I should post this on the general Board but my daughter's (19) dad is 11 months post diagnosis Cholangio stage IV metastasized to liver at diagnosis with four tumors (inoperable)..He was treated with palliative chemo...
cisplatin and gemzar with pretty good results up until 2 weeks ago when C-19s were in the 2100's and Dr. felt chemo was no longer working...switched him to 5 FU with Levo???  3 x's per month.  After 2 treatments his C19 has doubled to 4354...they see a new spot on his L4....he is a fighter...isn't ready to go and has shocked them with 11 months considering the severity when he was diagnosed...They said two months and to contact Hospice!! He has three stents placed (one 3 weeks ago) and his ALKP is really down from 900's to 354...so that is good...(but this is the last stent possible..they are metal) his CEA is up in 360's.  What do you think...are there any other options you would consider or have heard may help him have more quality time...or successful clinical trials..(compassionate use)...we are at CMPC San Francisco and of course will talk with oncologist but really want honest feedback from a member. He is not in pain, praise God.  He is losing weight for the first time...10 lbs in three weeks and appetite is less than normal...Does this sound like end stage...Please share your honest thoughts and appraisals...I want to be informed but realistic and prepared to help all of us.  God Bless and thank you for any advice...Gaye

  • From: Sonoma, California
  • Registered: Sat, 07 Nov 2009
  • Posts: 10

Re: Sterotactic Body Radiotherapy for Hepatocellular Carcinoma and Intrahe

p.s. to prior post...the comment "they said two months and contact Hospice" was when he was first diagnosed in Sept 09....Gaye

4 Reply by marions (edited by marions Thu, 19 Aug 2010 17:01:26)

  • Registered: Fri, 12 May 2006
  • Posts: 8,173

Re: Sterotactic Body Radiotherapy for Hepatocellular Carcinoma and Intrahe

Gaye....I am hoping for others to give us some input also.  There is good news in that the stents are functioning properly.  Also, your husband's current chemotherapy appears to be that of 5FU plus Leucovorin. (Leucovoring is an amino asset.)  At times other agents may be added or another regiment may be ordered.  This is something you might want to discuss with the oncologist.  Adding additional calories in order to stabilize his weight would be something else to consider.  Does your husband like certain foods better than others?  If so, I would focus on that.   Hang in there, Gail.  We are behind you, in front of you, and beside you.
Best wishes are coming your way,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER