Topic: mini triathalon

I *might* be participating in a mini triatholon at the end of July in Kalmar Sweden where I live. It is all dependent on recent scans and whether I get on chemo and if so how is it going.

I have talked to my best friend who is an oncologist, though not mine as she works with babies, but she thinks it is a good thing for me to do so I thought why not.

Anyway, I am going to try to raise money for of course! Does anyone know how I go about this? Is the cholangiocarcinoma foundation all organised and set up as a non profit charity? Or does anyone know if you can earmark donation money for cc at the larger cancer research charities?

ANy thoughts?


Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: mini triathalon

Hi Kris,

Good for you!  Many of my brothers friends and neighbors are running the St. George Marathon for the Cholangiocarcinoma Foundation. 

The foundation is up and running.  We have received many donations which will help  fund research and increase patient advocacy.

Here is the address where donations can be sent to the foundation.

The Cholangiocarcinoma Foundation
175 South Main Street, Suite 975
Salt Lake City, UT  84111-1937

Please feel free to contact me with any further questions.  Good luck on your marathon!  Let us know how it goes.

Stacie Lindsey

Re: mini triathalon

I was going to set up a page on I am American but have lived in Britain for 8 years and Sweden for about a year now. I thought with all the different curriencies that donations would come in, it would be easier to go through this site, although the drawback is they charge 7.34% handling fee. But it just seems easier for me and for everyone else if donations can be made through credit card with

The problem I have is that the charity needs to be registered with Guidestar or someone from the charity needs to contact to set up a way for the money to flow from them to you. Could someone from the Cholangiocarcinoma Foundation please do this? Thanks.

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: mini triathalon


We will be happy to help you out. 

Marianne and I are on our way in 10 minutes to fly to Houston for Demetrios' wedding (Mark's best friend).  It was one of Mark's dying wishes to see Demetrios married.  We are very excited to be there to support him in honor of Mark.

I will contact you for more information when I return on Tuesday.  Would you be kind enough to send me the contact information at