Topic: Hello all...Need your thoughts...

Hello all...

I hope everyone is doing the best they can be..I have missed you.  I have been so wrapped up in so much with Dave that a starting point is no where in site. I hope you all have been reading my Caringbridge journal, as that will give you a glimpse into Dave's battle he has been raging since October. Our roller coaster ride seems endless at times.

His latest battle is with pleural effusion...

The CT scan reads " Large right pleural effusion and moderate left pleural effusion" This means that he has a large amount of fluid in the space the surrounds the right lung, and a moderate amount in the space that surrounds the left lung.

Because of this, he has "volume loss" in the posterior right upper lung and the right lower lung.  He has some "volume loss" in the left upper lung as well, but this lung appears to be relatively stable.  The doctor tells me that volume loss is the lung colapsing slightly.

There looks to be inflammation and infection in portions of the left lung.

There is increased intra abdominal fluid in the spaces between the colon and the abdominal wall.

Basically...Dave has total body edema.  He has fluid going in every place that it can, and not the places that it should be.

Dave was given two units of blood tonight, because his blood count was low. 

Soo..here we are...and so it is.

What can I do?

I lost my incredible husband Dave to CC February 13th, 2011 after a 2 year battle.  He leaves behind a legacy that will never be forgotten..I will miss you forever.

Re: Hello all...Need your thoughts...

I have been following your caring bridge site and have the deepest admiration for you and Dave.  You are both tremendous, loving people that have, in my opinion, such great depth and wisdom.  Your journey has been an inspiration to me.  I hope the best for you and Dave.  I don't have any advice medically, however.  My dad didn't suffer with edema. I am thinking and praying for your family.  pam

Re: Hello all...Need your thoughts...

Hi Beth,

I have been checking your journal and although I don't have any answers for you I want you to know I am thinking of you both and hoping that things start to improve soon.  Take care of yourself, too and keep us informed whenever you can.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Hello all...Need your thoughts...

Hi Beth, the only advise I can give you is to stay strong. I used to think, who wants to be strong all the time. But, in the end you realize it does get you through the ups and downs. Teddy never had any edema so I am sorry I can't help you there. The only help I can give is to pray for you both and hope for the best. Hang in there.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hello all...Need your thoughts...

Hi Beth,

I am sorry to hear of Dave's latest battle here and I have not been able to follow your blog. But have Dave's doctors discussed with you about the possibility of having some of the fluid drained off? Here is a link that may be of interest to you.

http://www.macmillan.org.uk/Cancerinfor … usion.aspx

Thinking of you and Dave right now and my best wishes go to you both,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Hello all...Need your thoughts...

Beth, all I can offer you is my prayers.  I am so sorry you and Dave and your daughter have to go through this.

Re: Hello all...Need your thoughts...

Dear Beth - My husband has significant edema at times with no explanation of why or how it comes and goes. Overall, it gets worse with occasional relief. I wish I had answers for you. My prayers are with you. blessings, Susan

Re: Hello all...Need your thoughts...

Dear Beth....All my love coupled with tons of love is coming your way.  Fingers crossed for the pleural effusion to diminish and the infection to be conquered.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Hello all...Need your thoughts...

Hi Beth,
I too have been following the caringbridge postings. Just reading of the ups and downs is exhausting. The strength exhibited by you and Dave and your family is not short of heroic. Love of family and friends is the closest thing to the power of God and combined I believe they will get the Graff family through this and give Dave an amazing story of survival. Continuing to pray...

Grace and Peace,
bob

Re: Hello all...Need your thoughts...

Hi Beth,
I haven't been on lately here either but saw your post and wanted to say Hi. My husband Jeff was diagnosed Feb. 2009, and in August of this year the fluid started in his lungs. But his ended up being a hole in his lymphatic channel that was leaking chyle into the lining of his lungs, I guess this is pretty uncommon. We had them tapped two times and then had plurex catheters put in which we drain once a week. Just wanted to tell you we've been doing this for a couple months and the fluid has just about completely stopped! He was also on an iv antibiotic, which I can't remember the name of right now...sorry.  We are to have the drains removed in January. Our latest PET scan showed the cancer had moved into his lungs and abdomen now, so we are back doing chemo also.
I will be praying for you, Dave, and your family.
~Jenny