Thanks for posting that article, it made an interesting read.
Back in April when my Dad was diagnosed he was told quiet bluntly whilst in his own, you have terminal cancer and 2-3 months to live. A week later after being transferred to a Liver specialist hospital we were told that Dad could have Gem/Cis once his bilirubin level was low enough and that they had had a great success with this treatment. To us at the time this meant years not months. A few weeks later a meeting with the Oncologist didn't go as well as we hoped when he said "this treatment won't cure you just give you a few more months" something at the time we didn't want to hear. As a daughter watching your Dads face crumble and fill with fear is something I wouldn't want my worse enemy to go through. That night I worried that would it be worth the chemo effects for just a few months more, the answer was yes it would as my Dad would still be here with us and even then I was looking for trials or anything else that could prolong my Dads life.
Chemo or any other treatment has never got to become an option, Dads bilirubin has never been at a safe enough level, the tumor blocks the bile duct and the stents are useless, his only relief from the bile is the external drain. This news was given in September, this time by the Clinical Nurse Specialist after Dad had had his external drain, she told us 3-4 months max and Dad would just go more tired and eventually enter a coma. Mom went to pieces and it was the longest journey home. Our hopes had been pinned on Chemo and now they had been dashed.
Dad is in that 4th month now and apart from being more tired he said he feels no different than he did in September. He looks thin, which is so hard to see but he's still got that sparkle in his eyes. I now wonder whether chemo wasn't meant to be for a reason, perhaps Dads quality of life would not have been so good and the summer days out together wouldn't have happened. Dad has refused hospice help at the moment as he wants to keep things as "normal" as possible. The DN come everyweek and his BP etc are all fine, no fluid retention and most importantly no pain, he can still take care of himself and doesn't need Mom to help him with anything. When the time comes then we will call on home hospice help, and if Mom feels she can't cope then Dad has agreed to going into Hospice. I know that day will come sooner rather than later but for now we take it day by day.
Devoted Daughter to the most wonderful Dad a girl could ask for. Sadly lost his battle on 19.02.11, peacefully in the arms of Mom and I. As requested by Dad "we will keep on smiling".