Topic: Clean so far (sort of ...)
I'm going to be an optimist and post here. I had a left hepatic lobe resection @ NY Presbyterian 4/09, and still showing no new signs of CC (I think). The equivocation here is due to sharp eyed radiologists at NY Presbyterian who have commented in the SCAN reports about a slow growing small left lung feature. Visited with an oncologist and surgeon this past week and everyone is in agreement that the growth needs to be removed. It's a small, tapered helical thing somewhat like one of those outdoor lighted Xmas trees that can be collapsed flat. So far the CA19-9's have been good (<20).
The surgeon, pulmonologist and oncologist have not seen a feature quite like this before. The surgeon says there are three possibilities: 1) a recurrence of CC, 2) a malignant cancer, but unrelated to CC, or 3) a benign feature. We won't know until the surgery which it is. This would be a very simple, 20 minute surgery except the mammary artery, which was used in a cardiac bypass ten years ago, is right adjacent to the funky growth. I hope the surgeon is a non-drinker with steady hands!
BTW, as a general comment, there's a big difference in the radiology reports from the NY Presbyterian SCANs and those done locally. The ones from NY Pres comment on every unusual feature seen, while those done locally in MD are nowhere near as thorough.
Hospitals/Doctors Link, Our Experiences: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126 See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers: http://www.cholangiocarcinoma.org/majorcancercenters.htm