Re: Clean so far (sort of ...)

Jim,
I too am sending prayers and bed bugs - er, uh big hugs your way. God Bless!

bob

Re: Clean so far (sort of ...)

Jim
I hope everything went well - I'm looking forward to your post when
You get back.

Gerry.

Re: Clean so far (sort of ...)

Jim
Thoughts and prayers go out to you! All will be well.
God Bless
Jackie

29 (edited by Jim Wilde Wed, 25 May 2011 14:21:15)

Re: Clean so far (sort of ...)

OK, back in NJ now (Monday 5/23) UPDATE now back in MD Wed 5/25 --- no internet until today ... lung surgery was WAY more difficult than expected, but clean margins.  problems prevented posting until today.    There's always a kicker, though.  Now it's the final path report.  I expect that next week.  Saw my amigo Dr Kato on Sat (just a chance encounter).  He and Dr Sonett are running buddies. 
Dr Kato said:
2001 big heart surgery ... big infection
2009 big liver surgery (Dr Kato)... very big infection
2011 lung surgery (Dr Sonett) ... infection

Very, very funny ... ha ha ha
I plan to tell Dr Sonett:
2001 big heart surgery ... big infection
2009 big liver surgery (Dr Kato)... very big infection
2011 lung surgery (Dr Sonett) ... NO infection
and tell him to lay this back on Dr Kato.

Thank you all for your support during this latest challenge.   I'll let all know path results and start a new thread, depending on the news.

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Sending positive thoughts and good wishes your way Jim. Hope to hear from you soon. Nancy

Loving my husband from afar.

Re: Clean so far (sort of ...)

Jim, I am crossing everything I own for good path reports!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

32 (edited by Jim Wilde Wed, 25 May 2011 15:30:48)

Re: Clean so far (sort of ...)

Lainy, those lady docs are really watching out for me.  My dear Dr Lee was there waiting for me to come out of surgery, this time ~ 1PM, but she was there after 9 PM two years ago.  There's a decent chance this latest deal is not cc, but we should know next week.  I've been totally blessed with some very special caregivers and I love them all, techs, nurses and doctors alike.

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Excellent, Jim. Teddy could not rave enough about all his Nurses, starting with the surgeries in Milwaukee to Rehab to more here. The Nurses were great and the Doctors were all stupendous. Of course it may have helped that he was always praying for God to come through the hands of the Surgeons! You and we, lucked out. I hope you get your results quickly as I never did have a lot of patience!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clean so far (sort of ...)

Jim......your posting was very much awaited.  Fingers crossed for a clean path report.  Is the infection responding to the antibiotics?
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clean so far (sort of ...)

Hi Jim,

Thanks for letting us know how you are doing. Will keep everything crossed for you and for a clean report and sending you a ton of positive thoughts.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Clean so far (sort of ...)

Marion, the infection was a Dr. Kato joke!  No known infection yet!

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Oh, Jim....now that is good news.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clean so far (sort of ...)

I see the lung surgeon a week from tomorrow for post op followup and I plan to tell him about the Dr Kato joke, and will suggest that he tell Dr Kato, "Well, it looks like I'm the only surgeon to operate on Mr. Wilde who washes his hands."  I'm sure they'll both get a good yuk from this!

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Ha,Ha...Jim.  I can't wait to hear the response.  Love your sense of humor.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clean so far (sort of ...)

Nothing but good news.  We spent about 45 minutes Thursday reviewing the path report with a pulmonary oncologist, who very carefully translated the whole report for us.  The adenocarcinoma which was removed was absolutely NOT cc related, had not invaded the artery it surrounded, and was completely removed.  No further treatment needed, just follow as part of the usual cc followups.  Less than 15% chance of recurrence.  Had this nodule not been removed, it would have eventually compromised the artery, which would have been very grim indeed.

Now I will begin a new (hopefully totally boring) thread in the fall when I get another CT.  I'm feeling very fortunate right now!

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

WOW! Jim, that is the best news! You are right in step with Spring and new beginnings. Thanks, for the great report, Miracle Man!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Clean so far (sort of ...)

Jim....another surgical intervention with great results.  Fantastic.  Have you recovered and are back to normal?
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clean so far (sort of ...)

I'm feeling pretty good for being a pinata for three hours.  A little sore, but otherwise fine.  What's normal anyway?

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Thanks for sharing your good news Jim, great stuff indeed!!

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Clean so far (sort of ...)

Thank you for sharing good news...it helps my husband to know that surviving is a very real option...that he can live more than the one to two years he was given a year ago. He now talks about what we will do when I retire in 12 years-- a major change over his attitude only a couple of months ago. Keep healthy!
Regards,
Julie

Re: Clean so far (sort of ...)

Julie, you know there's something perversely good about cc in my case.  Had I not had cc, the malignant lung nodule would never have been detected until I respiratory symptoms, and that would clearly have been too late.  The artery would have been wrecked and I would have been a goner.  How many can say cc saved their lives?

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Jim...no, I can't think of one single person similar to your experience.  You are very special. But, then you already know that.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Clean so far (sort of ...)

Jim, I love how you always see the postitive!! Best of health to you! Nancy

Loving my husband from afar.

Re: Clean so far (sort of ...)

Just had a bit of a scare.  Had a series of CT scans 8/16/11 as a result of two elevated CA 19-9 tests (1st was 88, second was 133 after several years of normal [< 37]).  The scans were totally clean (we were expecting very bad news)!  So the onc Dr. Siegel has ordered a thyroid blood test.  I'm still learning about some of this stuff.  Apparently, an inflammation can cause CA 19-9 results to be elevated.  Also, learned another piece of information I was previously ignorant.  Dr. Siegel's PA told me that hair loss (which I've had for some time) is consistent with thyroid issues.  The good news is that thyroid issues are generally pretty easy to manage; cc not so much.

While at NY Presbyterian, I met my dear friend Kim, for the first time.  She was there for a procedure, which had yet to begin when we parted.  A very special occasion for both of us.

So, I have dodged another bullet and approaching 2.5 years clean.  Going to celebrate very soon with my long suffering medical advocate, dear wife Janis, very soon.  Sometimes I can't believe how lucky I've been.  I hate cancer with a passion!

Jim
Hospitals/Doctors Link,  Our Experiences:  http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126  See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers:  http://www.cholangiocarcinoma.org/majorcancercenters.htm

Re: Clean so far (sort of ...)

Hi Jim, love the good news! The good and bad passions! Bad=CC and Good-Janis!
I also am having a Thyroid problem! Went to an endocrinologist and he says my Thyroid is enlarged. Go know! Anyhew, I am having a terrible time getting regulated on Insulin (DiabetesII) and found out that an enlarged Thyroid can throw off the whole system. Pancreas, glands, glucose! I see him again Wed. next week and he is going to run some Thyroid tests and try to get me 'regulated'. 
I am so very happy for your results. Have a wonderful celebration!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.