Just had a bit of a scare. Had a series of CT scans 8/16/11 as a result of two elevated CA 19-9 tests (1st was 88, second was 133 after several years of normal [< 37]). The scans were totally clean (we were expecting very bad news)! So the onc Dr. Siegel has ordered a thyroid blood test. I'm still learning about some of this stuff. Apparently, an inflammation can cause CA 19-9 results to be elevated. Also, learned another piece of information I was previously ignorant. Dr. Siegel's PA told me that hair loss (which I've had for some time) is consistent with thyroid issues. The good news is that thyroid issues are generally pretty easy to manage; cc not so much.
While at NY Presbyterian, I met my dear friend Kim, for the first time. She was there for a procedure, which had yet to begin when we parted. A very special occasion for both of us.
So, I have dodged another bullet and approaching 2.5 years clean. Going to celebrate very soon with my long suffering medical advocate, dear wife Janis, very soon. Sometimes I can't believe how lucky I've been. I hate cancer with a passion!
Hospitals/Doctors Link, Our Experiences: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126 See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers: http://www.cholangiocarcinoma.org/majorcancercenters.htm