Topic: Good news...so far

Hello all,

Just wanted to post about my most recent 6 months scan.  I had a CT in the beginning of February that showed an area of my liver not 'letting go" of the dye as quickly as the rest. I was sent for an MRI which showed a 'suspicious" area.  I then went for a Liver Needle Biopsy (sounds about as much fun as it is!).  The biopsy came back NO MALIGNANCY, which was great news, but it did find inflammation which means I will have to go back in 2 months for another MRI to see if there are any changes in the area.

So, for now, it is good news and I am not going to stress about unless I have to! Well, at least I'll try not to.

I can't tell you how relieved I was for the good result from the biopsy, but of course I am wondering why I have inflammation.  Has anyone else had liver inflammation that was detected on scan (or otherwise)?


-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good news...so far

Hi Randi
I'm glad you posted, and cautiously pleased at your recent biopsy.  I remember the day before my dad's whipple the surgeon held us all in suspense for a few minutes whilst he checked a 'spot' on my dad's liver.  He quickly came to the conclusion that 'it's just a benign thing, the sort of thing most of us have on our livers, but would never notice'.  I'm wondering if he would call this inflammation.
Lets really hope so, and hoping that you are continuing to do well.
Kate

Re: Good news...so far

Randi - Glad you had some good news.  I remember my son saying tha this liver biopsy was the most painful thing.......

Mother of John who lost his battle on Oct. 9, 2009 at age 30....

Re: Good news...so far

Hi Randi Girl, you know how happy I was! My best friend out here has liver biopsies every few years because of something like that but it has never been anything more. Live it up kid and enjoy!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news...so far

Thank you Lainy!  You helped me so much and thank you for talking with me.  You put things into perspective...as my mother used to say "don't borrow trouble".

I found this great article about worrying.  Here is the link for everyone who is interested:

http://www.huffingtonpost.com/robert-le … 25063.html

Thank you all

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good news...so far

Randi....my uncle loved to use this expression:  "don't put the cart before the horse."  Often times I have to remind myself of that also.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Good news...so far

Hi Randi,

Thanks for sharing your news with us. "Don't borrow trouble". I've never heard of that  before but I like it a lot!

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Good news...so far

Hi Randi,
Congrats on the good news.

I like the phrase too. I've heard a couple of others I like: "Don't let worry live in your head rent free" and "Worry doesn't pay any benefits". By the way, I have inflammation which often shows up on scans caused by infection. 

God Bless!
bob

Re: Good news...so far

Thanx Bob, I'll put those phrases in my phrase bank!  My daughter's boyfriend told me that "worry is like a rocking chair, you go back and forth and you still don't get anywhere".  I like that one too!

One question about inflammation...do they generally prescribed antibiotics for your inflammation or just wait to see if it changes on the next scan?  I have this fear that I will be end up in this scan/biopsy spiral.

I have also sent my information to the Mayo Clinic in Rochester, MN for a second opinion...not sure what will come of it, but what the hey.

THank you for responding and for everyone's support!!

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good news...so far

Hi Randi, Great news! I love all the sayings about trouble and worry!
Antibiotics will not help inflammation unless there is an infection. Your doctor must not think there is an infection, but if you are not sure ask him/her to put your mind at ease. Now girl go and celebrate your milestone and try not to worry.  Hugs. Nancy

Loving my husband from afar.

Re: Good news...so far

Randi,
I can't speak to your specific case but my inflammation is always caused by infection requiring antbiotics. Hope you can sort this out. Praying for continued success...

Blessings!
bob

Re: Good news...so far

Just wanted to let everyone know that I have a followup MRI scheduled for  4/22 here in Rochester, NY and a followup doctor's appointment for the results on 4/26.  I have scheduled an appointment with the Mayo Clinic in Rochester MN (rochester to rochester!) for 4/27 regardless of the outcome of my MRI I want to be seen elsewhere for a fresh set of eyes.  I will be seeing Axel Grothey at the GI Oncology clinic.  Has anyone heard of him or seen him?  I will start with a blood test and then who knows.

I am hoping that the results of my MRI are good and this is just a precaution to have a look at my records and give me some guidance as to anything I can do for myself going forward.

Love to hear from others who have gone to the Mayo. 

Here's to everyone's continued good health!
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good news...so far

Randi....You will be in good hands with Dr. Grothey.  He specializes in GI malignancies, in particular, colorectal cancer, unknown primaries, and neuroendocrine tumors.  And, yes I know him personally and have attended several of his presentations at various medical conferences.  Good luck and please, keep us posted.  Oh, I also wanted to mention that the google function (top of page) will lead you to numerous threads regarding the Mayo Clinic.  But, most likely others will come along and enlighten you also.   
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Good news...so far

Hi Randi, congrats on your MRI!

Tomorrow I leave for Mayo (MN) for the 4th week in a row... more tests... After 2 doctors/2 hospitals at home, I called Mayo Clinic. The first doctor (oncologist), told me that there was no cancer on my liver or anywhere. But he decided that he needed more tests. The next week, I get more tests and then meet with Dr Rao and Dr Sanchez and and find out that I do have cholangiocarcinoma but it is not near the liver and can be cut out. (And they think I have colon cancer also.) So I leave tomorrow for a few more tests and then on Tuesday I go back and I meet with the doctors and surgeons for a game plan. But they were very blunt and if the tests show I have cancer on my lymph nodes, they can not help me. (I have Plan D ready).

What impresses me the most with Mayo Clinic is that there are hundreds of doctors in each category and they talk and consult with each other. (Mayo employs over 33,000 people in Rochester only)

I have stayed at many hotels, but stay at the Kahler Grand, which is across the street from the hospital and clinic. They have a cheap rate for $79.00 and it is worth the convenience.

Good luck with your appt and keep us posted!!

Cathy
"Life is 10% of what happens to us and 90% of how we respond to it"

Re: Good news...so far

Randi, you are terriffic! I am so glad you got in to Mayo. I picture CC cowering at the thought of Randi taking more action. I am just so proud of you! You know I wish you everything positive!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news...so far

Cathy, I didn't know you also have colon cancer, 2 CC's to deal with and a plan D. You are wonderful and an inspiration for others. I also wish you much good luck at Mayo. Too bad you and Randi don't cross paths there. Take care and I will be waiting to hear the results.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news...so far

Randig - My son was seen by Dr. Grothey at Mayo Clinic.  He was a very supportive doctor and searched every option for him.  Best wishes -- Mayo is very organized and easy to navigate.  We were there in December 2009 so it was minus twenty degrees outside!  Hoping you will find MUCH warmer weather.....Nancy

Mother of John who lost his battle on Oct. 9, 2009 at age 30....

Re: Good news...so far

Thank you all for your responses and I hope I hear from more people as time goes by.

Marion:  It's nice to know that Dr. Grothey is so well thought of and you know him personally.

Cathy:  You have a lot on your plate and I am so grateful that you took the time to give me all the information you did!  I hope your tests all go well and you are a surgical candidate.  I hope you live close to the Mayo and haven't had to travel for hours to get there (4 weeks in a row!).

Lainy: I will keep you posted on what happens at the Mayo (and here for that matter).  Thank you for the kind words of support.

Nancy: I am hoping that the Mayo is the well-oiled machine that I have heard it is and that I can see the people I need to.  And April in MN sounds much more appealing then December in MN!

How have people handled making plane/hotel reservations?  They say I could be there from 1 to 3 days and I am not sure how I should plan for this.

Thanx again everyone!
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good news...so far

Randi I just retired from 40 years as a travel consultant. Hotel reservations can be changed easily. Make them directly with the hotel if you don't have an agent. The airline will give you the lowest fare but there would be a penalty for changes. Honestly its up to the reservationist you get and if you explain the situation if you call to change the  return you may get a 'nice' agent who will just change it for you, no fee. If you call on your own, hotel and car reservations can be changed easily with no penalties.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news...so far

Randi, make your return flight on Friday and the last flight. Because so many people leave for weekends (Mayo staff) that if you make your return flight on Thursday, you will not be able to fly standby on Friday because it is over booked.

I have been flying every week from Chicago every week and the tickets run over $500 because I never have an advanced purchase. BUT I keep reminding myself that you can not put a price on health and especially CC. wink

Because I have flown so much, I immediately learned that the airline staff in Rochester understands patients do have appts that cancel or finish earlier, so I have never been charged a penalty in Rochester. But remember that they are very small planes and only delta & american go there. Now another option is fly into Minneapolis and take the scheduled bus which is only 90 minutes away. Hope this helps....

Tests finished today and flying home tomorrow am. Learn all my results on Tuesday.

Cathy
"Life is 10% of what happens to us and 90% of how we respond to it"

Re: Good news...so far

I have had a CT report of a cyst on my liver since '07 and had the whipple 5/2010.  most recent MRI this month still shows cyst on the liver and doc seems not concerned, even though there is now evidence of some fluid in the area of the cyst.  The MRI shows everything else looking good.
Ray

Re: Good news...so far

Ray - Sounds like you are holding your own and, since your doc is not concerned, I think you should remain positive.  Thanks for the good news....Nancy

Mother of John who lost his battle on Oct. 9, 2009 at age 30....

Re: Good news...so far

Well Nancy, I wouldn't say my doctor is not concerned.  He doesn't know why I have inflammation and mentioned the possibility that they did not "hit" the spot with the needle biopsy.  My husband asked him how large an area they were trying to hit and he said 2.5 x 3 cm of 'area' that didn't look like a tumor.  My husband contends that anyone doing that job all the time should be able to hit an area that size.

I am trying to stay positive and for the most part I am, but I have moments, like today when i had a little indigestion and imagined a 'sore' spot on my abdomen. It really brings me down and i get really anxious.  But I would say 80% of the time i am really upbeat and don't dwell.

I am going to make my reservations for Mayo tomorrow (thanx Lainy and Cathy for your suggestions.  I have requested all of my records, so that is done.

I want to enjoy my days and put this on the back burner for a few weeks....we shall see if that is possible. 

All you guys are great and while I try not to come to this site too often (it makes me anxious to see bad news) I am so heartened when I see that someone has replied to my posts!  it's a push/pull thing for me!

Hugs to everyone and hears to good health all around!
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good news...so far

Randi, don't underestimate yourself, you have the 'moxie' that is required for CC. If you feel up to 80% most of the time that is btter than most people who are healthy! Keep up the good work Randi girl.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good news...so far

Randi - I understand completely.  Keep us posted on the Mayo visit and positive thoughts coming your way - Nancy

Mother of John who lost his battle on Oct. 9, 2009 at age 30....