Topic: Prayer Pants

I created these Prayer Pants that I wear every time I see the Onc, or go to any chemo, CT scan, whenever it has to do with cancer. The pants allow me to take my family, friends and prayer partners with me at all times for their love and support.  I can't figure out how to post a picture on here, so here is a link to my blog.

http://captjr.blogspot.com/

I started this blog for running, but obviously there was a detour in my life and it gives me the chance to write something that my family and friends across the US can read.  When ever they want and keep up with the situation.  They don't have to feel like they are intruding with a phone call or are always in the dark on what is happening.

And yes I also go by the Captain, as it was my handle for over 20 years in Indianapolis.

I guess I never was fond of my name, and worked very well with an alias.

Prayers to all.

Grover

Re: Prayer Pants

Captain, I LOVE, LOVE, LOVE your idea and your pants! Fantastic!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Prayer Pants

Captain...How come you have kept this a secret?  I love the blog and the pictures are precious.   Would you please be so kind and post the link again in our Blog section?  This way it is easily accessible to all and it won't get lost in the threads.  Let us know if you need help or contact Rick@cholangiocarcinoma.org.  He is our webmaster and gladly he will guide you along. 
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Prayer Pants

Love your prayer pants Grover!  Will be sending thoughts and prayers your way as you go through your CT scan this Wednesday!

Re: Prayer Pants

Oh Captain, those pants are the greatest.  What a great idea.  Perhaps you could patent your pants? ha.   And my prayers are with you!
Diane

Re: Prayer Pants

Captain:  What a wonderful idea.  I showed the pic's to my husband Tom who is also fighting CC and he liked the idea so much that we want to do a pair of 'chemo' pants for him.  We have a caring bridge page for him and a "Love and Prayers for Thomas Lepp" on FB.  But with something like this he (like you) would be taking all the people that love and care for him to his chemo sessions.  Those pants would become a keepsake for me if/when he is called to our Lord.

We will be getting a pair of pants and will be starting with family and friends signing his pants.  LOVE IT, love it, love it.  What a great idea!

Hugs, and thanks for sharing,

Margaret

Re: Prayer Pants

Captain,
I told Lauren about your chemo pants and she absolutely loved the idea. I loved it too. We will be looking for a pair for Lauren. Thanks!

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Prayer Pants

Those prayer pants rock! and so do you! Prayers are being said for you from NJ! smile God Bless you.

In loving memory of my beloved and cherished grandmother who fought until the very end. Loving you forever abuelita...

Re: Prayer Pants

Thanks to all of you for your comments and prayers.  Please feel free to make your own pants, blankets, etc., to take your family and friends with you to maybe provide that extra support you need.  I'm glad to be able to give something to others that will help them and their families thru this time in our lives.  Or just the idea that we can still think outside the box on both support and witnessing for the Great Healer above.

I had my latest CT scan today and will know the results on Friday AM, will let you all know asap.

Grover

Re: Prayer Pants

This brought a smile to my face tonight.

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Captain-Loved your pants!! Loved your blogs, you work way to hard!! You need to "play the cancer card" and make someone else rake and mow!!
Lots of prayers-Cathy

Re: Prayer Pants

Wow, Captain, thanks for posting, you made me smile--that is one unique way of showing cancer who is wearing the pants! I think the best thing about them is that they make people ask questions, they will not be ignored, and then  people learn about cc. Oh, and they make you look stylin'!

Patty

Re: Prayer Pants

Good news, good news.  CT scan showed the tumor is shrinking.  I saw the original scan and the one from Weds and it's true.  Also my Alk phos which started out @ 511 is now down to 105.  I'm in the normal range, well, according to the blood work, but we all know I'm not normal.  I'm staying on the same chemo plan till 12/30, " Happy New Year".  My onc will be talking to Dr. House to see if the chemo pump is an option, with the thoughts in mind that " what the heck the current plan is working fine, why change it? "

Remembering that beyond all this good news I still have CC, but conditions are changing that may allow more options in the future.  And no matter what, I truthfully won't ever be cancer free.  But each new day is a new adventure, and a day spent with loved ones.

Thanks for all your support, and I throw prayers and positive thoughts back to each and every one of you.

Grover

Re: Prayer Pants

Grover....Fantastic News. Congratulations.  As Patty has mentioned, these cancer cells are getting the message:  You are waring the pants.  Discussions in regards to the hepatic pump have come up frequently and I would be open to listening to what the physicians have to say. You might want to ask:  why do you recommend it over the present treatment, how often has it been used on CC patients, what was the outcome with this treatment in re: to CC patients? 
Additionally here is a link that may be of interest to you:
http://www.upmc.com/Services/liver-canc … erapy.aspx
Keep on wearing those pants in this battle.  You are the boss.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Prayer Pants

Captain, that is the way a man in charge steers the ship! You made my day, heck you made my weekend. You are making that CC walk the plank and don't accept any mutinys or change of course! Here's to more smooth sailing!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Prayer Pants

This is great news Grover!   What chemo are you getting?  I start my new regimine next Friday!  I am praying that good news will be in my very near future!

Cindy

Re: Prayer Pants

Dear Captain,
I am so happy for you. It gives all of us so much hope when treatments are working. Plus, I bet those snazzy pants had something to do with your success! Keep up the good work.

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Prayer Pants

Hi Grover,

Excellent news indeed!! Thanks very much for letting us know. Each day is indeed a new adventure and I know you will enjoy it with your loved ones. Looking forward to hearing more good news from you.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Prayer Pants

Thanks to all for your prayers and support.

Cindy,     Chemo drink recipe:

2 bags of saline, 1 hour each taken before and after chemo.
1 large bag of Gemcitabine
1 smaller bag of Platinol
84 prayers daily
1 pair of prayer pants
semi trailer full of love from others
and 1 group of caring people on this discussion board.

  LOL...........Don't know how my brain functions sometimes, my daughter saw a T-shirt in the gift shop that I said I wanted for Christmas.

It said  "  I have Chemo Brain, what's your excuse? "

Love and prayers to all of you

Grover

Re: Prayer Pants

Grover....love the recipe....sound like success to me.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Prayer Pants

Grover, saw the same T-shirt in the gift shop last week!  Can I use your recipe, but make a couple of substitutions?  I am so happy for you!


Cindy

Re: Prayer Pants

Hello everyone!  Guess who I got to meet at the hospital last Friday?  If you guessed Grover or Captain with the prayer pants, you are correct!  Is it weird for me to say that I found it so exciting to meet someone with the same rare cancer as I have, that lives so close to me and goes to the same Doctors?

Cindy

Re: Prayer Pants

Cindy,

That is exciting. What a small world. Did you know it was him by the pants he was wearing?

-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Prayer Pants

OMG, Cindy!  It doesn't get anymore exciting than that. I always say on this site that when you meet a member it is amazingly awesone!!!  Oh, I am so glad for you both. Mini convention!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Prayer Pants

Cindy...two people with a rare cancer treated by the same physician, indeed that beats the rare occurence of this disease.  Add to that a personal meeting - that comes close to being a miracle.  I share your joy.
All my best wishes,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER