We need to lean heavily on the Secretary of HEW to change this insane policy, if in fact, Medicare still disallows coverage.
Medicare used to require a 'study' for a cardiac patient to get an AICD (pacemaker/defibrillator). The 'study' included inducing an arrhythmia in the patient, with potentially fatal results. Medicare has since reversed itself on this crazy policy. The apparent genesis of this policy came about when some genius in the Social Security Administration realized that as many as 250,000 per year could benefit from the technology ... then came the realization, "How are we going to pay for this?" Thus came the gatekeeper policy of a 'study'. At the time I had to go through this nonsense, I wrote to my US Senators, Congressman and the Secretary of HEW. Only one Senator even had the courtesy to reply, but it was clear his aide who replied didn't even understand the policy in question.
There are clearly some circumstances where transplantation for cc patients makes medical sense, and this needs to be forcefully presented to the appropriate administration officials. This is another case of the government denying effective and needed care.
Hospitals/Doctors Link, Our Experiences: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3126 See page 4 of thread for Dr. Tomoaki Kato info.
Major USA Cancer Centers: http://www.cholangiocarcinoma.org/majorcancercenters.htm