Topic: SENSITIVE: What You May Expect
SENSITIVE: Dear Shar, has your ONC called in Hospice yet? Hospice does not have to mean the end but they are wonderful for Home Care and they will ease your way on this journey. They also have a booklet on what to expect when, that I found very helpful with Teddy. He really followed it pretty closely. He started sleeping more, eating less, and about 10 days prior to the end he started 'picking' at his clothes and sheets. This is some kind of preparation they go through. It is NOT all that scary, honestly. I used that time to be nearer to him in every way and when the end came it was something I had never witnessed in my life. I have never been afraid of dying and it even convinced me more so. My daughter was right with me and Teddy's last day was awesome! Robin kept saying, "Mom do you know how privileged we are to be a part of this". Some privilege, I know, but you would have had to be a part of it. Teddy sadly was in a lot of pain for about 4 hours but as his body started to close down the pain slowly left. He laid there for hours with his eyes wide open but never blinked. They DO know what is going on and they DO hear. I told him several times it was OK to go to his peace and that I loved him. Each time he put his fingers in his ears. He was NOT ready. He was waiting for something. As the pain started to decline he began "greeting" others from beyond! He would hold out his arms, encircle them with a big Teddy bear hug and even smooched his lips to kiss them. This went on for about 3 hours! There are no words to describe the calm and beauty of those 3 hours. I cry now as I think about it, not tears of losing him but tears at the awesomeness of it all. After his meet and greet was over the chest rale started which is the heart shutting down. If you are not prepared it is a rather disturbing noise and loud. I understand now there is a patch for it which we did not have. Robin got upset but I explained that he is not feeling any pain, it just sounds bad. There was only the 2 of us here as 2 teen Grandsons were home. When the rale started Robin called the boys and told them Papa was passing but they did not have to come. With in 15 mintues they walked in. Robin said, "Papa. Kyle and Brandon are here". 3 minutes later he passed. That is what he was waiting for. I feel he didn't want Robin and I to be alone and she felt it was one last life lesson that he was teaching the boys. Sorry to be graphic but to me this is a good graphic. Hang in, be strong and do not be afraid! I hope this helps. And I hope she stays very comfortable.
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.