Porter, I must have a stomach of cast iron. :)))) After a heart attack in 2002, I was put on a 325 mg aspirin per day as well as Plavix (had a stent put in an artery...so had to take Plavix). Plavix was fairly new at the time...and hadn't been studied longer than 3 months usage....but at the end of my 3 months, it had been tested for 6 months...so on we went....and then at 6 months....it was then okay for a year. Before we knew it...I was on Plavix until 2011....8 years after the heart attack. My new cardiologist took me off of it. I had been changed several years earlier from the 325 mg aspirin to the 81 mg baby aspirin...which I've been on since. In 2010, I took Advil for an extended time for a muscle pull....often on an empty stomach....which almost caused an ulcer. That was on top of the Aspirin and Plavix. A round of Prilosec and backing off the Advil fixed that problem.
As to how I am feeling....physically....not so great.....emotionally...not so great. Right now, I"m having a trust issue with ANY doctor. After the lung blood clots, I'm having some difficulty breathing when I walk a ways...which I read is common and can last a very long time. I'm still dealing with trying to find some kind of compression for the leg that had the blood clot remaining....I developed Venous Stasis.....fluid into the tissues causing swelling. The support hose I got from a fitting place, slid down my leg in just a few hours. I gave up and this morning wrapped in ace bandages...though that isn't great either....it sides down too. The place I got the hose has some new compression sleeve that velcros in place onto your leg....and that looks somewhat more promising. We'll see. They didn't have the right length though and had to order it. Gah! There may be a problem with my port...in that it was implanted incorrectly...long story there as well. It's been accessed twice....and each time there were problems. It also stings like an electrical shock as the fluids and chemo was going into it...during that first chemo. They said it was because it was going in so fast....but an oncology nurse at the hospital said it shouldn't do that...and the nurse today didn't want to say one way or the other...but she winced and slightly shook her head...so apparently her answer was also that it shouldn't do that through a port.
Emotionally,..... I'm a basket case again.....starting a new oncologist...had the
"tour" this morning with hubby. It's a big cancer center here in town....they actually do clinical trials...though I'm sure nothing to do with our cancer. I "think" I'm going to get along with my new oncologist, ...that's "my" intent anyway...but I can't help but be scared and worried after the blood clot event/incident. The oncologist "should" have recognized what was going on.....my GP diagnosed it in 3 minutes with my verbal description a week later. My husband's GP was aghast that the oncologist hadn't recognized the problem....but.....maybe he would have IF he'd bothered to come out to the chemo room to actually examine me himself. So....thus....I'm scared like crazy to do the next chemo....what's coming next? Oh....and as far as the now "fired" oncologist...he came highly recommended...by other doctors...and a ton of people, alike. He's supposed to be the smartest of all the oncs in town....and super compassionate.....spending "time" with his patients. I just never saw "that" doctor. I think he is maybe now too stretched thin trying to run this clinic all by himself...no other oncs with him as backups. The new place has assured me that IF the nurses push the "red" button...all available oncologists come running from their offices and mine will then stay with me if the event is serious enough. I can only hope that isn't needed....I'm tired of these "events" and screw ups.
Thanks for asking.....wish I could have more cheerful news....and maybe in another several weeks, I'll feel better about things....once I get going with this new clinic and hopefully things go better. I tend to be a more emotional person.....strong..but emotional..so if things finally straighten out, and all I have to deal with is the chemo and not all this extra stuf..incisions not healing, port not installed right...can't access port....blood clots....oncologist ignoring me or raising his voice when he does see me....I just might be able to deal with the chemo if that's ALL I have to deal with. Believe me...if things are going better...I'll be on here shouting it to the rooftops.
Just for today, I can get through anything. "Never let fear decide your fate." (from the band, Awoination.)