Re: Unusual Cholangio Guy - Survivor Against the Odds
Lainy and Bob,
15 years? That would seem to be rare. I found out early that cc is so rare that good stats are hard come by and unreliable. Some friends have chided me for trying to look at stats with "Just live your life!" and their point is well taken and intended, but still I like to know where I am as much as possible.
Is it true that in general survival is under 50% for 3 years? And it depends on so many factors, the T, R, N, where it was found, its size, how far from other structures, etc.?
I think by the time someone is 7 or more years out, they will probably die of something other than cc, right? "Remission" has become an increasingly fuzzy word in my mind, seeming to mean "We don't see it now" but "It could come back any moment."
To what would you ascribe your long 15 years since diagnosis? What did you do for how long and how did you feel? How has the field of cc changed over your 15 years in it?
It's great to hear from a Major cc Veteran. Anything you have to say is much appreciated here.