I was diagnosed in April 2011. I found your site a couple of months ago but was having trouble posting. I wish my doctor had told me about you. Reading the discussion boards has been so helpful.
Before my diagnosis I was a healthy and happy 59 year old planning my wedding and really enjoying my life as a mother of 2, grandmother of 4 and a flight attendant.
I began to feel more tired than usual and started having really awful heartburn. These were my only symptoms. I was able to get into a gastroenterogist pretty quickly and had a cat scan and a biopsy. I was told I had adenocarcinoma. There were tumors around and in the liver and some lympth nodes.
My sister had died when she was 58 of what she said was liver cancer. On her death cert. it says CC. She lived 17 months after diagnosis.
I started Cisplatin and Gemzar the first week of May. The side effects were pretty bad. I have been on Gemzar only for quite awhile now. I have had a cat scan every 4 months and each time its been good news. Many of the tumors have disappeared and the largest one has shrunk.
One thing I wanted to mention is that the best thing I did was have a port put in at the beginning. I hate needles and it has made my treatment much easier to deal with.
I was told there would be no cure for me, no surgery possible and that I would be on chemo of one sort or another until they had no other drugs to try. So far the Gemzar is working. I accepted this because it's the same thing my sister was told. I did go to UCLA for a second opinion and the doctor there agreed with my current regimen.
My life is totally changed of course. Besides having to deal with not feeling well and all the other things this disease brings I also have to worry about not having my work insurance after June. I will go on COBRA but I understand its quite expensive.
I'm fortunate to have not lost my hair, nor suffered any of the wasting
associated with this cancer. In fact, I have gained weight! After dieting all my adult life I figured I might as well enjoy food. I eat everything I want and have gained 30 pounds! Not a good thing and even the doctor is concerned about what I weigh. If I thought I would be around this long I would have been more careful. I know I should diet but don't seem to be able to do so.