Topic: 6yr Anniversary

I was diagnosed with Cholangiocarcinoma in Minneapolis Feb. 2006, I was told there is no cure. The following weekend I was contacted by my primary doctor who told me that Mayo has a research protocol , and asked if I would like to go.
I visited the Mayo that week and started Chemo and Radiation fairly quickly, I went through at least 100 tests and in April I was told I was a candidate for the protocol and placed on the transplant list.
I was very sick, I had lost 35lbs, weighing 120lbs. and very yellow, doctors feared I was not strong enough to do the surgery.  On May 25th a liver came and I underwent the transplant. The next morning my eyes were white.
My recovery seemed to take forever and I had a few issues, I was in the hospital a little over a month, I weighed 109lbs when I left the Hospital. I walked and exercised every day, went back to work part-time in August, full time in September 2006.

I feel so blesed
John

Re: 6yr Anniversary

Congrats John!!  What a great success story you are.  continued good health to you.

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: 6yr Anniversary

Welcome, John to our remarkable family and you are truly one of our Miracles. We are so hungry for stories of HOPE just like yours. Keep up the good work and please don't be a stranger as we need hope givers just like you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: 6yr Anniversary

John, welcome and thank you for sharing your story. Yes, you are blessed indeed. May your blessings continue for years to come!

Re: 6yr Anniversary

This is what we love to hear! May we have many more success stories like yours! Hugs. Nancy

Loving my husband from afar.

Re: 6yr Anniversary

You are blessed for sure John.  Thank you for sharing your story.

Wishing all God's blessings!

Re: 6yr Anniversary

John, thank you so much for sharing, my day started off bad but you just fixed it. Thanks again, and best of luck for a bright healthy future.

Re: 6yr Anniversary

Congratulations, John! Thanks so much for sharing your great news.

Take care and be well!

Susie

Re: 6yr Anniversary

Fantastic! Here's to another 6 and then some!

Derin

Husband to Eileen, Dad to Hunter (15) and Sydney (13)
Attitude is everything, you have to keep it positive! And take it one day at a time, it's all anyone can do with this disease...

Re: 6yr Anniversary

Dear John,
Always wonderful to hear a hopeful, positive, happy story. Please continue to take of you, and please stay in touch. Cheers to 50+ more happy, healthy, hopeful years filled with laughter, and tons of smiles!!!!!
Sending love and hugs,
Roni
ronidinkes@yahoo.com

Re: 6yr Anniversary

John:
HAPPY BIRTHDAY!!!! It's so wonderful to hear good news like this! I will gladly have a month in the hospital for 6+ years!
Prayers and hugs for many more years for you.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: 6yr Anniversary

These posts DO help those of by giving hope.  Wonderful..and keep posting.

Re: 6yr Anniversary

Dear John,

You truly are fortunate. If you don't mind my asking at what stage were you diagnosed ? If early, how was it detected ?

I lost my Mom to this curse and each day i spent asking what we did wrong. She had a very healthy lifestyle, but She was detected at the last stage. Just wanted to know what could have we done.

Stay blessed.
Dee

Re: 6yr Anniversary

Dear Dee,
Please believe this...you did nothing wrong!  CC is a very sneaky cancer and most patients are diagnosed stage 4.  There are not many warning signals.  Be kind to yourself --- mourn the loss of your Mom, but in so doing don't make yourself wrong.  Praying for your inner strength.
In peace,
Karen

Wishing all God's blessings!

Re: 6yr Anniversary

John- BRAVO!!! I am 2 months short of saying 5 years cancer free!!! Thanks to a transplant!! I too did the Mayo Protocol at Barnes-Jewish in St. Louis MO with Dr. Chapman, my hero. I had my first transplant May24,2009 and then on July 4, 2009 I awoke vomiting blood and was basically bleeding out because radiation had caused my hepatic artery to rupture. Thanks to God and Dr. Chapman I received the gift of life again with just barely 24 hours to live. 2009 and 2010 were rough years. I also contracted CMV!! I am excited to say I take 2 pills every 12 hours to stay alive and other than that life is normal!!!
I was privileged to be asked to do a video for Barnes and you can watch it at www.barnesjewish.org/patientstories/cathy
John please keep posting, people need to hear success stories, you are an inspiration and HOPE to our CC family!! (Don't wait another 6 years to post LOL!!!)
Lots of prayers for many more 6 years-Cathy