Topic: My husband has it too
My husband Chris was diagnosed on 4/10. Wow! What a blow that was. It still doesn't seem real. He's 50 years old with no other health issues. His doctor discovered elevated liver enzymes during a checkup. Got worked up for hepatitis but those tests were negative. Anyway, ended up getting an MRI and it was determined he had tumors in his liver with lymphadenopathy. Further testing determined it was ICC stage IV. Inoperable and incurable.
We decided to start the recommended chemotherapy (Gemzar and Xeloda) and his symptoms have been alleviated, liver enzymes down, bilirubin almost normal now after 2 rounds (6 weeks). Checked into possibility of stent placement but bile duct blockages are too high up in liver to be effective.
Now that he's feeling better (no more itching) we are planning on seeking additional treatment at a center with more experience with this cancer.
Wanted to say that this website has been a blessing to us. We get lots of information as well as the knowledge that we are not alone. Its very comforting. Thank you all so much for sharing your stories.