Topic: Surviving against the odds

My name is Susan and I was diagnosed 18 months ago.  I had had colon cancer nine years ago and due to complications from scar tissue in my colon, frequently had to go to the ER with bowel obstructions where the obstruction would usually resolve within a couple of days after having an Nasal Gastic tube inserted.  In November of 2010, I went in and after they inserted the NG tube I was sent for an X-ray to confirm that the tube was all the way down into my stomach.  The X-ray reveal dilated blood vessels in my liver.  Further testing confirmed a tumor in the crux of the portal vein.  I had surgery where the right lobe was removed entirely but they were unable to get clear margins because it was lodged against the portal vein and they couldn't compromise the blood supply to the remaining left lobe.  Following surgery I had four months of chemotherapy; gemcitibine and cisplatin. After chemo, I had six weeks of chemo-radiation; 5 days a week and wore a portable chemo pump with 5 FU. I tolerated everything very well; no hair loss, minimal nausea, etc.  I am happy to report that my 6 month post treatment CT was clear and I am feeling 100%, back to doing all the things I love to do; gardening, tennis, and raising my three beautiful children.   Just wanted to share this happy story to give any newly diagnosed patients hope.

Re: Surviving against the odds

Hi Susan,
    Thank you so much for sharing your story here.  I'm having one of those days; feeling down and rather hopeless. Your story really brightened my day and hope is back.  You really are quite courageous and a true inspiration.  Can't wait for my hubby to wake up from his nap so I can share it with him.  He's having a "down" day too.  He's anxious about his CT scan tomorrow to see if the chemo is working.
Anyway, thanks again and may you always have good news to share.
                                                                  Dianne

Re: Surviving against the odds

HELLO Susan and boy do we welcome another Miracle! You have really run the gamut and what an inspirational story. HIP, HIP HURRAH! Please do keep us updated though as we truly care. WOW!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Surviving against the odds

Hi Susan,

Thank you so much for posting about your miracle.  Please keep in touch and let us know of your continued success. With all the grim statistics, you truly are a shining beacon of HOPE!!

Love, -Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: Surviving against the odds

Susan...you are a shining light for us all.  Wonderful news. Stay well and please, keep us posted.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Surviving against the odds

Awesome Susan! Congratulations for surviving colon cancer and having a successful resection! I am so glad you are feeling so well and back to all your usual activities. You do give hope! Nancy

Loving my husband from afar.

Re: Surviving against the odds

Hi Susan,

Welcome to the site. Thank you so much for sharing your story with us all and wow, what a story. And what a superb outcome to it all for you!! I wish you continued success and enjoying doing the things that you love. Please keep coming back here and let us know how things go for you.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.