Re: Through my husband, i join this very scary world of cholangiocarcinom
So sorry you had to join us but we are all here to help. I diagnosed my mom with Stage IV CC with numerous mets to the lungs, (I'm a Cytologist) so I know how hard this monster can be. She was 76, still working full time by choice, walking 6 miles a day and involved in Church and a zillion other things. She was diagnosed in May of 2008 and died in April 2009.
CC is indeed a roller coaster ride. You do seem to be doing all the right things!
I don't know if anyone has mentioned it but there is a search engine on the site. You can query anything that comes to mind and just type it in and it will pull up comments.
We also have Dr. Giles here as well.
Don't ever hesitate to vent, rant or sound off! We have broad shoulders and we all understand what you're dealing with!
I'm sending hugs and tons of prayers for you and your family!
"A prognosis is simply an audit of how truly precious each day is. Live each day to the maximum, celebrate what was, and what is - Don't spend your life looking forward to what will or might be." .... words of wisdom from my beloved son on hearing of his grandmother's CC prognosis.