Topic: Newly diagnosed
I can't same I'm glad to be here but I can say I'm glad this site is here. My dad was initially diagnosed with liver cancer but after more tests they found he has bile duct cancer too. I don't know much of the details (compared to other posts I've read) other than he has started chemo today. He started a clinical trial at the University of Michigan. His port was put in on Tuesday and had 7 hours of partially chemo and anti-nausea medicine today. He will take home a fanny pack with chemo for the next 48 hours and then a visiting nurse will come on Saturday to take chemo out of port. He will have chemo every other Thursday with blood work and Dr. visits in between.
He is a healthy man, 67 years of age. There are no other health issues other than high blood pressure. He was a firefighter for 25 years and owned his own electrical company for many years too. He has four children and has been married to my mother for 40 years. This has been a shock to all of us. His initial signs were loss of appetite, weight loss and then he had severe gas-like pains. All of these symptoms started about 2 months ago. His general doctor (who he has seen for years) had suggested all the test to look for this cancer. They started at Beaumont Hospital in Michigan but were unhappy. They moved to U of M and are very pleased.
I believe this is the info for the clinical trial...
IRB Number: HUM00035756
Title: adults with advanced or metastatic biliary cancer
Abbreviated Title: UMCC 2009.119
Condition Category: Cancer - Gastrointestinal
Purpose: Characterize the safety profile of ARRY-438162, determine the maximum tolerated dose of ARRY-438162 through review of all available Cycle 1 data and the assessment of dose-limiting toxicities
Study Description: Characterize the safety profile of ARRY-438162, determine the maximum tolerated dose of ARRY-438162 through review of all available Cycle 1 data and the assessment of dose-limiting toxicities, characterize the plasma harmacokinetics of ARRY-438162 and a metabolite AR00426032
Age Range: From 18 To 100 years
Gender:Both Female and Male
Smoking: Both Smoking and No-Smoking
Medication: No Restriction
This study is seeking: Patient with Specific Condition
adults with advanced cancer
advanced GI cancer
advanced solid tumors
metastatic biliary cancer
Tags: Advanced , Biliary , Cancer , Gastrointestinal
Location of Study Visits: Ann Arbor, MI
Principal Investigator: Zalupski,Mark M
I live in Nevada with my family, including my sister. My two brothers reside in MI (with their families) along with my mother and father. Needless to say, it is difficult to get information sometimes. My mom is very positive and doesn't want to worry us, my brothers are doom and gloom, so I prefer not to speak with them. My outlook is to stay positive. Anything can happen, especially with prayer, hope, love and support.
I appreciate the support here. If there is anything I need to add or have my mother ask while she is at the doctor please let me know. Thank you for taking the time to read our journey!