Topic: My husband just diagnosed with cc
My husband was diagnosed with PSC 20 years ago. The day we had been dreading happened early this summer when he began to get sick and experience jaundice. We returned to the Mayo Clinic in Rochester, MN where he had first been diagnosed. The ERCP to put in the stents caused pancreatitis. At the same time the doctors diagnosed cholangiocarcinoma by way of the DIA FISH test. The biopsy was negative. The doctors felt that the cancer had been found early, which would give us time to treat the pancreatitis. Meanwhile one of the ducts in his pancreas burst, spilling fluid into his abdomen, which quickly became infected with staph. He spent the next two months in and out of the hospital and ultimately finishing up at home on IV antibiotics. He finally had the picc line removed ten days ago. Within three days, he was back in pain. This time the stents were blocked and the liver was infected. Back to Mayo for the 6th ERCP in three months.
Now he is ready to have the EUS in which they can determine whether or not the cancer has spread. I am so scared for the results. There is a pain deep in my chest that I cannot dislodge. Even though the doctors are fairly certain they caught the cc early, I am shaking with anxiety. What happens if it has spread? If it hasn't spread, and he is okay to get a transplant, how likely is it that it could come back? Are there any others who have gone through a similar process as us? I need to hear some encouraging words. We need some prayers.
I would appreciate any information anyone can share.