Topic: Wanted to take a moment to introduce myself
Mom was diagnosed with intraheptic CC last Aug and had successful resection to remove the right side of her liver and a little bit of the left side of the liver along with her gall bladder. Her surgery was done at UCSF, mom recovered from the surgery really well. There was no plan to administer Chemo or Radiation following the Surgery. 3 Month follow up Scan and blood test results revealed lesions on her remaining liver with elevated CA 19 9. We were referred to an oncologist at UCSF, first combination of GEM/CIS did not have any affect on mom's CA 19 9 numbers, so her oncologist started mom on OX/Xeloda combo. After the first two treatments, mom's CA 19 9 dropped from 34382 to 17614, how ever the new combo seems to have stopped working, she had 3 more treatments but the numbers are not coming down. Her last CA 19 9 value is at 50161. The oncologist doesn't think the new combo is working, her last treatment was on 06/08. The last month has been hard on mom, she's had several fevers and was prescribed antibiotics to treat the infections.
Mom's most recent bilirubin reading is at 10 +, her oncologist referred us to a radiologist to see if they can stent her to drop the Bilarubin level. The attempt failed due to the way her bile duct was rerouted to her small intestine from her surgery, they said it was impossible to get to. She is waiting to get an external drain installed either today or tomorrow. I'm hoping for a successful procedure.
I was at a lost and very desperate as the oncologist seems to have run out of new chemo combos for mom to try even if the bilirubin drops. They may have some clinical trial available at UCSF if the bilirubin level gets controlled. How ever I was not very optimistic. I found Marion's email on this site and she is the most wonderful, caring person like so many other people on this board are. I followed Marion's on contacting Stanford Radiology to seek for other treatment options. I was able to get mom's records sent to Stanford and we have an appointment to see Dr Koong next Wednesday.
I have been reading this site a lot, and in some way I feel very connected to many of you already even though this is my first time posting. Many thanks to wonderful people on this site who have provided so much support to caretakers like me.
Marion, this is Anne if you didn't guess already