Topic: My husband died of cholangiocarcinoma
I just found this site and I am so thankful I did. My husband was only 52 when he died on April 8, 2007 - Easter Sunday. We were married for 33 years.
He was diagnosed on January 4, 2007. He only lived three months. Those three months were like living hell on earth.
He had a double lumin in his arm to be fed, he had a metal stent in his bile duct, he had two tubes draining from each side of the liver. In those three months he had every test available, and we were told he was a candidate for the whipple surgery. They said it had not spread. The surgery was to be 8 hours long. After an hour they came out and said it had gotten to his hepatic vein and aorta. Needless to say, my kids and I were devastated. He died five weeks later. Shortly before he died he was hospitalized because he couldn't breath. The cancer had gotten into his chest lymph nodes and were pressing on his lungs. I brought him home to die, that's what he wanted.
I am so lost, I don't know what to do or where to turn. This man was my best friend for 34 years, and I am so overwhelmed with grief.
Hopefully reading some of these messages will help me through and help me cope.
Every story on this board is so devastating, and my heart goes out to each and everyone of you who has lost someone to this vicious cancer. We aren't alone, although it feels that way sometimes.
I would love to hear anyone's story, if only to vent or talk.
Thank you for listening to my story.