Guess my initial post didn't really give enough info - I don't want to give the impression I am doing poorly - it's just the opposite - I have been fortunate to be able to tolerate a lot of chemo - the cis gem combo has worked better than anyone expected - my last ct was clear!
So a little more about my journey.
In February 2011 started noticing an unusual sensation around my belly button and then got what appeared to be a yeast infection, after several months of attempting to treat with antibiotics it just kept returning. Then in late May I developed jaundice (turned an impressive shade of yellow) and was hospitalized and a stent placed into my bile duct. Belly button - turns out was a tumor - Sister Mary Joseph Nodule. After a bunch of testing was diagnosed with Stage IV CC - tumors in bile duct, liver, gallbladder, belly button and lymph nodes.
Belly buttom tumor surgically removed in July. Plastic stent got infected in late July and developed pancreatitis (worst pain I have ever felt), hospitalized again and plastic replaced with titanium stent - so far haven't had problems with it. Started cis gem Aug 1 2011.
I did initially get 3 different opinions - Dr. Harris was positive that he could treat - other 2 were so bleak really wasn't even a thought not to choose Dr. Harris - 1 was from CC specialist at the Moffitt Center in Tampa.
Throughout this process we have looked into resection, transplant, radiation, chemoembolization - distant tumors and undefined tumors initially ruled out everything except chemo.
Now plan is to change to carboplatin gem combo to give kidneys a break.